Honored Kid

Ethan VanLeuven

Ethan VanLeuven Kid Photo

Location

West Jordan, UT, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

September 2011

Status

Angel

Treated At

Huntsman Cancer Institute Primary Children's Medical Center

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My Story

Ethan was diagnosed in September of 2011 with acute lymphoblastic leukemia (ALL) at 21 months of age. Nearly 2 years into treatment, Ethan relapsed. He received the regular treatment for relapse, but did not respond to the relapse protocol. In November of 2013, Ethan used a study drug, blinatumomab, to get him into remission in order to get a bone marrow transplant. Ethan did cranial and full body radiation, and he got his bone marrow transplant in January of 2014. Unfortunately, Ethan relapsed again two months later. He was able to try the same study drug again, but this time it didn't work. Ethan traveled to Seattle to do a clinical trial involving t cell therapy. Unfortunately, this therapy failed as well. Ethan passed away October 28, 2014. Ethan was a kid who loved life. He loved Mickey Mouse, the Piano Guys, and superheroes. Ethan was a superhero himself. We as a family are so grateful for the advances that have been made in medicine. The studies that he participated in, while they did not save our son, gave us an extra year with him. Our prayer is that one day, there will be a cure so that others can have their sweet children for longer than we had our Ethan.

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