Honored Kid

Lyla Bogardus

Lyla Bogardus Kid Photo

Location

Northford, CT, US

Diagnosis

Rhabdomyosarcoma

Date of Diagnosis

December 2009

Status

Passed away

Treated At

Yale-New Haven Children's Hospital

Change your kid's logo

My Story

Lyla Bogardus was first diagnosed with rhabdomyosarcoma, a rare cancer of the muscle cells, in December of 2009, when she was only two and a half years old. After almost a year of treatment, including major surgery, chemotherapy and radiation, Lyla was cancer free. In July of 2011, a new rhabdo tumor was discovered during a follow-up scan. Lyla underwent another major surgery, chemotherapy, and radiation. In May of 2012, she was again cancer free. For two years, she remained cancer free and lived like a normal kid, going to school, joining Daisy Scouts and playing basketball. This past June, on the last day of school, another rhabdo tumor was discovered. Lyla had another major surgery in July, and finished 20 days of radiation in September. She fought long and hard. Lyla passed away on Christmas morning with her family surrounding her. Rhabdomyosarcoma is a very rare cancer. There are only about 350 cases of rhabdo diagnosed each year in the United States in children under the age of 21 years. About four children per million healthy kids under the age of 15 will develop rhabdo each year. Five facts about Lyla’s treatment over the past five years: Lyla has had 82 days of chemotherapy, and counting; Lyla had been under anesthesia over 70 times; Lyla had 68 days radiation treatments; Lyla had over 20 CT scans to check for disease; Lyla had three major surgeries to remove tumors. Five fun facts about Lyla: Lyla’s favorite color was purple; Lyla’s favorite Disney character was Queen Elsa from Frozen; Lyla’s favorite movie was Wall-E; Lyla loved all animals, especially birds, cheetahs, horses and wolves; Lyla loved hanging out with her friends at Brownies.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org