Amanda was diagnosed with stage IV high risk neuroblastoma at 16 months of age in January 2011. After initial chemotherapy and surgery she went into remission in July 2011. She was in remission for two years, and then relapsed in August 2013. She endured numerous treatments following her relapse, but nothing (not even novel treatments) was effective against her rapidly progressing neuroblastoma. She passed away in May 2014 at age 4.
Amanda was a very happy, affectionate girl who loved to dance and play. She also loved animals, rainbows, the moon and stars. Her favorite videos were Mary Poppins, Aladdin, Toy Story and Cinderella. Whether she was at home or at the hospital, she always had a smile on her face and could light up the room with her charming personality. She was very strong and courageous in facing her cancer treatments and the challenges that they brought. She was our hero!
We created a St. Baldrick's Hero Fund in Amanda's memory to fund the most promising pediatric cancer research. We want to ensure that in the future other families don’t lose a child to cancer.