Honored Kid

Vhito D.

Age 7
Vhito D. Kid Photo

Location

Philadelphia, PA, US

Diagnosis

ATRT (Atypical Teratoid Rhabdoid Tumor)

Date of Diagnosis

April 2014

Status

In treatment

Treated At

The Children's Hospital of Philadelphia

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My Story

Vhito was a happy, healthy 1 1/2 year old boy when he suddenly started losing function of his right arm in the summer of 2013. Each day that went by Vhito was getting weaker, more pain & using it less! After 9 excruciating months, 6 different Dr's, 6 different diagnosis, 2 hospital stays, many different medicines to try & control his pain we decided it was time to put our foot down & demand every possible thing that came to our heads! That's when in April 2014 we went to Children's Hospital of Philadelphia for yet another opinion from a Dr, after examining Vhito the Dr along with a few colleagues decided they were going to admit him & figure out what the cause of the pain & no arm function was. By 5pm that day Child Life were taking our babies to another room so that the "Oncology Dr's" could talk to us, we sank & cried & couldn't breathe. At this point they knew he had a massive mass in his chest but that was all, they didn't know if it was malignant or benign but they did know chemotherapy needed to start immediately because the tumor was pushing on his spine & heart. The next week was probably the slowest week of our lives. After many, many scans, test, blood work, urine cultures, stool samples & biopsies we finally found out our baby had ATRT, an extremely rare & aggressive cancer. They told us he would need a full year of chemotherapy before we could consider surgery & any other option. His chances were slim but we kept high hope, we knew our baby was a fighter & he would get through this! As of today September 26th 2014 our FIGHTER has responded so well to everything, he had most of his tumor removed August 18th, he is now undergoing proton treatments (radiation), after radiation we will continue chemo, he has 44 weeks total from the start of this journey! Never believing your child would get cancer you don't follow things like it or donate or research but when your child is diagnosed with this evil disease it really opens your eyes & I cannot express the sadness I feel knowing that Childhood Cancer gets so little funding & no little attention!! It's time everyone steps up & fights for all these babies that are fighting for their lives day after day & let them have the future they deserve!! Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

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