Honored Kid

Skylar May E.

Age 5
Skylar May E. Kid Photo

Location

West Bay, KY

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

July 2013

Status

No evidence of disease

Treated At

St. Jude Children's Research Hospital

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My Story

Update 8/27/2015: Mimi celebrated her 2nd birthday back at St Jude's doing a 10-week intensive rehabilitation. Two years of miracle! She is now back home busy growing up. She is gaining more strength and learning to walk and talk and eat! We thank everybody for the extraordinary support given to our family.

Update 7/9/2014: Mimi turned 1 year old last May 31, 2014, diagnosed with Anaplastic Ependymoma (brain cancer) at 6-week old. After 2 craniotomy and 6 rounds of chemotherapy (plus one G-tube placement), Mimi was NED (No evidence of Disease). It is your support and donation to Cancer Research that gives Mimi and her Friends chance to celebrate many more birthday. Please support Childhood Cancer Research.Pls support St. Baldrick. We don't just have hope. We have faith. Full story at http://www.caringbridge.org/visit/bravemimi/mystory ...and though she is but little, yet she is fierce. Thank you for supporting our Warrior princess and her friends as they battle bravely the rough path of cancer. Your generosity and your prayers will go a long way in finding cures for Childhood Cancers. Mimi was born on May 31, 2013 at Georgetown, Cayman Islands. What a beautiful baby she was. Being the second child and an only girl in the family, she brought completeness and so much joy. She is loved. She is brave. And she is our warrior princess. On July 12, 2013, a large tumor, engulfing her right brain, was discovered. She was just turning 6 weeks old. It was Thursday afternoon when our Nana Imee said to Mom sadly, "Mimi's eyes looks that of hydrocephalus". Alarmed, Momma immediately reseached symptoms of Hydrocephalus (thanks to Google!) and called Uncle Istong who confirmed the manifestations. That night, we drove Mimi to Georgetown Hospital Emergency Room. Cranial ultrasound and CT Scan confirmed the mass blocking the fluid (CSF) and caused hydrocephalus. Immediately, referrals to Miami Children's Hospital was arranged. We flew (commercial) first thing Saturday morning with Nurse Janel accompanying us until we were admitted to the ICU. It was an emotional roller-coaster ride for Mom and Dad since then. Dr. John Ragheb, our neurosurgeon, scheduled Craniotomy (brain surgery) on July 15, 2013. It was an excellent resection... but because of her age, no treatment plans has been made. UPDATE November 4, 2013: We are heading to St. Jude's for further testing and possible be on SJF07 Trial (Baby Brain Chemo Protocol). We gonna give this Cancer a good fight and Mimi will come out victorious in God's name. November 20, 2013: we had 2nd brain surgery at Le Bonheur to remove the residual tumor. Dr Klimo and his team manage to give us a clean scan. Thank you God! March 9, 2014; we are finishing Round 4 of the induction chemo! Little superstar she is! We believe that our little fighter will beat the cancer. We don't just have hope. We have faith.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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