Honored Kid

Nathan T.

Age 12
Nathan T. Kid Photo

Location

Providence, KY, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

February 2010

Status

In treatment

Treated At

University of Texas M.D. Anderson Cancer Center Kosair Children's Hospital, Norton Healthcare Children's Hospital of Pittsburgh Duke Children's Hospital & Health Center Monroe Carell Jr. Children's Hospital at Vanderbilt

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My Story

Nathan was diagnosed with a brain tumor in Feb. 2010 at 2yrs. old. He has a Desmoplastic Infantile Ganglioglioma, a rare, primary, non-malignant but normally very treatable type of tumor with a good prognosis. Nathan's has been everything except that. In June 2012, it spread into 7 more brain lesions and 4 spots in his spine. We have been in this battle for 49 months, Nathan has had 15 surgeries including 2 resections. Every chemo protocol has failed and we are currently getting ready for a third clinical trial for a targeted therapy for a genetic mutation called BRAF, we are out of options for chemotherapy and avoiding radiation. There have been so many hiccups and complications, many times we were told we would lose him but still he fights. Nathan's father was diagnosed with cancer just weeks before Nathan and he lost his battle in Dec. 2011. We currently travel from W. KY to Duke University monthly and he sees his home doctor in Louisville weekly. Nathan has some permanent damage and disabilities but continues to be the most loving and happy little boy. I continuously search and research all across the country for something to save him and have doctors at Stanford, MD Anderson, Sloan Kettering and Dana Farber also reviewing scans quarterly. Research funding is so desperately needed for these children, we need some options to save him. Nathan has a group Facebook page: Please Pray for Nathan Thomas that is updated daily. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

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Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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