Honored Kid

Austen V.

Age 16
Austen V. Kid Photo

Location

Belgrade, MT, US

Diagnosis

Langerhans Cell Histiocytosis (LCH)

Date of Diagnosis

April 2010

Status

In maintenance

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My Story

Austen was diagnosed with LCH at the age of 5 after having several weeks of eye pain and swelling and pain on his head above his eye. He had a CT scan done in Bozeman in April of 2010 that showed a mass had eaten through Austen's bone above his eye and was very close to his brain. We were then sent to Salt Lake City the following day to meet with a pediatric neurosurgeon. That was the longest day of my life! Austen had a surgical biopsy done the following day and the mass was identified as Langorhans Cell Histiocytosis. Treatment: chemotherapy and steroids. Austen had a port implanted in his chest and received chemotherapy, in Bozeman, every week which then turned into every three weeks for a year. We were in SLC every month to every few months for MRIs and full skeletal scans. During all of the medications and procedures Austen was the bravest, strongest, even happiest little boy I have ever seen. After every chemo his dad would take him for a chocolate donut. That's what he talks about most now, not the surgeries, chemo, hair loss or pills, the chocolate donuts! Austen's mass was completely gone in March 2011. He still receives MRIs and Skeletal scans to make sure there aren't any new lesions. He is a truly amazing little boy! Thank you for asking him to be an honor child for St. Baldricks! It means a lot to Austen and his family!

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