Honored Kid

Lily A.

Age 7
Lily A. Kid Photo

Location

Akron, NY, US

Diagnosis

Retinoblastoma

Date of Diagnosis

September 2013

Status

In treatment

Treated At

The Children's Hospital of Philadelphia Women and Children's Hospital of Buffalo Wills Eye Institute

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My Story

Lily's retinoblastoma was first noticed early on. She had a "cat eye"/ a shine to her eye that was especially noticeable in photos. You might not always be so fortunate to notice it early on, because even if you "know the glow" your child might not have that symptom. It is best to have all children go through an eye exam at an eye specialist. Probably at least once a year. Even if your child does not have this very rare illness, you can detect other simple problems early on by dilating and checking the eye. In kids and adults. Unfortunately, our concerns about her eye were put off by her first pediatricians (repeatedly). The earlier you take care of it the better-- as it is a VERY treatable disease under those circumstances. Fear not! ((DON'T let anyone dismiss you as a worried parent. If you don't feel right about something, be persistent. Don't just assume the doctor is ALWAYS right...)) By God's hand she is here today. When the eye was finally removed, out of the optic nerve that was cut - there was only 3 micrometers of clean nerve. That's God size. Lily's just living her life. Cancer or no cancer. :) ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~ Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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