Welcome to our page for our beautiful daughter and sister Sally, who was diagnosed with Infant ALL Leukemia in July 2013 at the age of 10 months. This form of the Leukemia is very rare, only 90 cases are diagnosed a year in the United States. In addition, Sally's is a Mixed Lineage Leukemia (MLL) with a translocation of her (4;11) chromosome.
Infant Leukemia is considered very high risk. Unlike Leukemia in older children which has a 85% survival rate, Infant Leukemia only sees a 47% survival rate. It is much harder to treat when diagnosed this early, especially with an MLL and requires more intensive chemotherapy treatment than what is typically used in older kids with the disease.
Sally began treatment in July 2013 and is expected to receive intensive chemo for two years. After that, we will have to wait another year and a half to make sure her cancer does not relapse. This means we have to hold our breath until 2017 begins if everything goes to plan. Sadly, relapse rate is high in Infant Leukemia, which often leads to treatment involving a transplant, so the threat is a very real one for our little girl.
Although we know Sally is getting the best treatment available, much of it is outdated and can cause serious life-long complications including heart damage and even failure. Kids with various cancers are all experiencing the same challenges regardless of their diagnosis. Although the treatment is killing the cancer, it is doing irreparable damage to children at the same time. This is why funding of pediatric cancer research is so badly needed.
Dad, Mom, Thomas (7) and William (4) are determined for Sally to get through this and move on with her life. Please help by funding research for better treatments.