Honored Kid

Alexa R.

Alexa R. Kid Photo

Location

Acworth, GA, US

Diagnosis

Neuroblastoma

Date of Diagnosis

April 1998

Status

Angel

Treated At

Memorial Sloan Kettering Cancer Center Children's Healthcare of Atlanta at Scottish Rite

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My Story

Just days after her first birthday, Alexa was diagnosed with stage IV Neuroblastoma, an aggressive form of cancer. She was given a 20% chance for survival. Fortunately, Alexa was enrolled in a clinical trial and for the next three years underwent surgery, chemotherapy, and radiation. After two years of experimental treatments, her cancer is gone. Her survival has come with many challenges. Due to the radiation to her primary tumor site, her spine has been damaged with severe scoliosis and lordosis. Her lungs have been affected by this and she is now on oxygen 24/7. She has had many episodes of asthma and requires breathing treatments and chest compressions twice a day. She has recently been evaluated for a double lung transplant at Children's hospital of St. Louis and doctors are waiting to see if the spinal correction surgery done recently there will help her lungs function better before deciding she needs new lungs. Alexa has spent close to the last 4 months inpatient in the hospital due to the spinal procedures and has recently come home to attend a day rehab program in Atlanta to get her strength and endurance back after this recent surgery. Although there are side effects from her treatment, Alexa is a beautiful girl with a big, bright smile and an amazing attitude. She is in the fourth grade and loves math and reading, helping others, playing the piano, and having fun with all of her friends. Despite her desire to be like all the other kids, she leads a life that is far from normal. At age nine, she is so full of life and a true miracle of God's blessings.

The Childhood Cancer Ripple Effect

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Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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