Honored Kid

Jason G.

Age 13
Jason G. Kid Photo

Location

St Clair, MO, US

Diagnosis

Neuroblastoma

Date of Diagnosis

December 2009

Status

No evidence of disease

Treated At

Cardinal glennon SSM Cardinal Glennon Children's Hospital St. Louis Children's Hospital St. John's Mercy Medical Center

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My Story

On December 11 2013 our lives changed forever when they told us Jason had a mass on his spine. After multiple doses of chemo, radiation, stem cell transplant, antibodies, two trial drugs, and so much more JJ is NED! Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. It all started when Jason developed a small cough and a high grade fever of 103. I gave him Tylenol and watched him at first. The next couple days he was.not getting any better so I made an appointment. They said it was pneumonia and sent us home with antibiotics. On the third day his fever was still not going away and he was getting worse so I made another appointment. They tested him for RSV and he was positive. The nebulizer treatments were not helping his oxygen levels so they took an xray. The xray confirmed pneumonia, but it also surprised us with a big mass in his chest. We were taken by ambulance to mercy (big st. Johns) and there they confirmed he had a mass in his chest ,in his spinal column, and nodules in his lungs. They did surgery to remove it. Their suspicions were right...neuroblastoma, but his is a little different. It had noncancerous tissue also which made it ganglioneuroblastoma. They told me the news no parent wants to hear. Stage 4 high risk favorable ganglioneuroblastoma. Since Dec 11 2013 Jason has had two surgeries multiple chemos radiation a stem cell transplant and so much more. Before we found the mass he had no symptoms at all except something called colonus(sp?) Where his foot bounces when you push on it! Who would have thought?! Jj is a trooper and is smiling every day! He has so much life to live and we know he's.gonna beat this monster!!!

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