Honored Kid

Violet V.

Age 12
Violet V. Kid Photo

Location

Olathe, KS, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

November 2013

Status

In treatment

Treated At

Children's Mercy

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My Story

Violet June is a very feisty and sweet 5 year old (she will be 6 in August.) She was diagnosed with B-cell ALL Leukemia on November 13, 2013. Towards the end of October, we noticed that Violet was walking weirdly, she was tired all the time and looked a little pale. We took her to our pediatrician a few times and he referred us to a neurologist at Children's Mercy downtown with a suspicion of Guillaine-Barre Syndrome. The neurologist confirmed GBS and we were sent home, expecting her to start improving within a few weeks. Violet's walking continued to worsen and she started having pain in her lower back and legs. We took her to the ER twice in one week and then finally back to the Neurologist. We knew that it had to be something more than the GBS. The neurologist promptly admitted us to the hospital after her saw her again and blood work was drawn. 2 hours later we had the Leukemia diagnosis. This whole process took about 3 weeks. The pain in her legs and lower back are a result of the cancer cells in her bone marrow. We were in the hospital for 10 days after her initial diagnosis because Violet struggled with fevers... during that ten days she had a port placed in her chest, 3 full rounds of chemotherapy,2 lumbar punctures with intrathecal chemo and a bone marrow biopsy. Violet was then sent home where we gave her daily medication and she went to the clinic each week for testing and chemo. At her diagnosis she was put in a "standard risk" group and her treatment for the first 28 days (induction phase) was based on the "standard risk" protocol. At the end of the induction phase they did another bone marrow biopsy. They found that her Leukemia wasn't in remission so Violet was moved to a much more aggressive 56 day "very high risk" phase of treatment. Next Friday will be day 29 of this phase and they will do another bone marrow biopsy and assess the effectiveness of the treatment. We are trusting and praying that her counts will be trending in the right direction. We are trying to walk in faith not fear! Violet's treatment will continue for another 2 to 2 and a half years. The last 8/9 weeks have been so crazy, but we have have been so bless by family and friends that have surrounded us with love, support, and prayer. This was the story of Violet June as told by her parents. This is why the money raised by St. Baldrick's is so important. Help find the cure.

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