Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.
Lilli had infrequent minor pain in her right leg that was misdiagnosed initially as growing pains May 2011. She had a xray which came back normal. When the pain went thru the roof overnite near the end of July, we went back to her pedi. Another xray was taken and came back normal but because of the intense pain, Lilli was sent to a pedi orthopedic surgeon the very next day. His xray showed an abnormal area in her pelvis. He sent us to MD Anderson. After many scans, etc she was diagnosed with Ewings Sarcoma on August 12, 2011. She went thru 17 cycles of chemo and numerous blood and platelet transfusions from August 2011 to May 2012. She had a internal hemipelvectomy with a total hip replacemt and a custom metal prothesis June 2012. For months she went thru physical therapy and used a wheelchair, a walker, then crutches and finally started walking with just a slight limp. Every 3 mths she went back for scans & labs. She was NED (no evidence of disease) until late June 2013. A new tumor was found on the left side of her pelvis. It was in a lymph node instead of in the bone. She went thru 2 cycles of a new chemo regiment which reduced the tumor. She had a resection Sept 11,2013. The surgery went well and she went thru 10 more cycles of chemo.
Lilli was a very sweet, smart, compassionate, funny and happy child who just wanted to be normal. She understood that there is a big lack of funding for pedi cancer and wanted to help make a change!
Lilli was one who loved life. She cherished every single minute not spent in pain or treatment or medicines or lab work, etc. Even better, she loved sharing life with most everyone she met. Go Gold for Pedi cancer awareness!