I was diagnosed with high risk anaplastic medulloblastoma on 9 July 2012 aged 4. I had surgery followed by 31 sessions of proton radiation to my brain and spine in Aug/Sept 2012 along with weekly chemo. I completed 5 of 6 rounds of chemotherapy over the next 6 months before disease progression in April 2013. In May 2013, I started new chemo for relapse medulloblastoma and in April 2014 after another 9 rounds of chemo, the scan finally showed no evidence of disease.
I have totally lost my balance and I have sight and severe hearing loss but with therapies I continue to get stronger and more independent.
I also still have MRI scans every 6 months and checkups with Endocrinology, Audiology, Immunology, Ophthalmology, Neurology to monitor all the side-effects from treatment.
I attend school full time, have made some friends and I am also a Junior girl scout.
I am happy and I am so glad that I beat brain cancer twice.