Honored Kid

Maddox L.

Age 13
Maddox L. Kid Photo


Sycamore, IL, US


Atypical Teratoid Rhabdoid Tumor

Date of Diagnosis

September 2011


No evidence of disease

Treated At

Ann & Robert H. Lurie Children's Hospital

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My Story

Maddox was the second of our children to be diagnosed with this rare and aggressive form of pediatric brain cancer. He vomited just two times before I drove him to the ER for a CT scan. I knew before we even had the results. I could feel it. Maddox was 7 months old at the time. His sister, Mattea, had been diagnosed 5 years earlier when she was 9 weeks old. We'd been down this road before. It wasn't long before we got the confirmatory results: "Yes, Mrs. Lesorgen. The news is not good. Maddox does, indeed, have a brain tumor." Shortly after we were on our way to Ann & Robert H. Lurie Children's Hospital of Chicago (formerly Children's Memorial) to be reacquainted with all of the members from Mattea's medical team. Maddox, now 20 months later, has endured several tumor resections, numerous surgeries, and the rigorous 51-week chemotherapy protocol, with 6 weeks of proton radiation. Thanks to all of that, he's a bouncing, happy, and busy little man! Pediatric cancer research is grossly underfunded. I hope that Maddox's story promotes awareness and encourages donations to St. Baldrick's.

The Childhood Cancer Ripple Effect

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