Honored Kid

Daniela Lakosilova

Age 26
Daniela Lakosilova Kid Photo

Location

Norridge, IL, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

August 2007

Status

In treatment

Treated At

Comer children's hospital, University of Chicago Ann & Robert H. Lurie Children's Hospital

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My Story

Daniela was first diagnosed with Leukemia in August 2007. The whole summer she was practicing for International iceskating competition ( she got 2 first places and 2 second ). During that time she started complaining about legs pain and short of breath. I took her to doctor for her regular check up and 2 days later I got a phone call to come to dr. office right away. August 15th, 2007 our lives changed completely. Daniela never gave up. She went through treatments ( chemo, radiation ) for little over 2 years and was off the treatments for little over 2 years when she started complaining about back a tummy pain. We went to ER with, what we thought, Appendicitis. We were wrong. The blood work showed abnormal blast and we were back. Because of her relapse, she needed a bone marrow transplant. There's a millions people in an international and national bone marrow registry, but no match for my daughter. We had to do something, so we started hosting a bone marrow drives. We signed up around 2 000 people, but unfortunately still no match for Daniela. We had to look for another opinion. Daniela underwent an experimental Haplo plus umbilical cord stem cell transplant November 19, 2012. She's still fighting side effects of this transplant , but she's a 100% cord DNA. During her fight she participated in many fundraises. She raised money for Leukemia research foundation, Leukemia Lymphoma society ( was voted as an Honor Hero this year) and also for an American childhood cancer organization. She was volunteering at Homeless shelter every month before she relapsed. She was very sad when I told her that she can't do it during her treatment, but she didn't forgot about these guys. When one organization asked her what would she liked fro christmas, she didn't think twice. She asked for sweatshirt and sock for these guys. She wasn't able to deliver all the clothes by herself, but we know that those guys had something to keep them warm this winter. My daughter thought me a lot during her fight. She's the strongest person I know. She's not a normal teenager. She's strong, caring, giving and loving person. She would rather give than take. When people wants to give her something, she always say, there's someone who needs it more than me. This is a story of my daughter. She's not alone in this fight. There's so many kids fighting for their lives. Some will make it, some will not. That's why we have to stop this BEAST winning. No child should die because of cancer. No parents should loss their child because of cancer. That's why we need your help. Please help to stop this BEAST taking our kids from us. They deserve to be happy and not stay in hospital, miss their friends, siblings, being poked and sick from all the chemotherapy and radiation.

The Childhood Cancer Ripple Effect

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