Jack was almost 5 when we noticed him having trouble buttoning his shirt. We found out a few hours later that he had a large mass in his brain. We were sent by helicopter to CHOP because he had been having small strokes and was medically fragile and unstable.
Although his tumor was "inoperable" - the team at CHOP felt surgery offered him the best chance of survival due to the risk of a life threatening stroke and stress on his brain. He did have a major stroke on the operating table (he was in the OR for 12+hours), but miraculously survived.
He continues to have some of the tumor that was not safe to take out and it is monitored by the doctors at CHOP.
Our lives are forever changed and we don't take any milestone, experience, smile or tear for granted. We have met such amazing children and families on our journey and lost too many too soon. We are touched by their love and strength as well as the support of those inspired by our Jack.
Immediately following surgery, we were told the doctors were not certain if he would survive the subsequent three days... In March2013, we will celebrate 5 years of SURVIVAL.
Thank you for supporting Jack and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure.