Honored Kid

William Shannon

Age 18
William Shannon Kid Photo

Location

Shepherdstown, WV, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

December 2009

Status

In treatment

Treated At

Children's National Medical Center and Children’s National Research Institute (CNRI)

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My Story

William's journey began at 4-1/2 years. He had an enlarged lymph lode the size of a golf ball in his neck that we monitored. Increasingly we noticed fatigue and he complained of leg pain. During a Thanksgiving trip to Disney World, William only wanted to ride in the stroller and had no interest in getting out for all the rides. Upon our return home, his pediatrician tested for various viruses and super viruses and noticed his white blood cell count dropping with an increasing number of abnormal white blood cells. He contracted strep but the antibiotic was not killing the bacteria. He was then admitted for further testing when his blood work revealed he was at risk for seizures. After a day in the hospital with worsening blood work, his pediatrician contacted Children's Hospital to consult with the hematology department. Additional guidance from Children's still provided no answers, so he was transferred to DC. A bone marrow aspiration finally revealed that acute lymphoblastic leukemia was the diagnosis. His pediatricians were as surprised as we were since all blood tests that are markers for leukemia came back negative. William underwent a procedure to insert a Broviac catheter (which was replaced with a port after 7 months) and began chemotherapy right away. Anticipating a 2-4 week stay, we were blessed to be able to take William home after the 3rd day of chemo as he was in early remission. His remission has remained for these last 36 months of treatment. He has been remarkably healthy and has had only one additional hospital stay. William is now a fun 7 year old in the second grade whose world centers around ice hockey and his beloved Washington Capitals. He plays ice hockey 3 seasons a year and baseball on his off season. He likes to be on the ice more than anything else, and will settle for playing ice hockey video games when he cannot. He loves to ride bikes, swim, sled and just be on the move. He can be a great brother or quite a little pest to his big sister. He is a very funny boy who comes out with some great lines and keeps us all laughing. He is shy with new people unless you talk hockey with him. He is branching out into watching more football as we have no hockey season so far this season. He has accepted his cancer as part of his life but never lets it keep him from doing what he wants to do. He wears his diagnosis as a badge of honor and has just rolled with all he has had to endure without complaint. He is scheduled to complete treatment on 2/8/13.

The Childhood Cancer Ripple Effect

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