Honored Kid

Megan K

Megan K Kid Photo

Location

Omaha, NE, US

Diagnosis

Rhabdomyosarcoma

Date of Diagnosis

February 2004

Status

Angel

Treated At

Mayo Clinic Rochester Children's Hospital & Medical Center, Nebraska

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My Story

We knew something wasn't right with Megan in September 2004. After several trips to the doctor's office, one morning she woke up with a lump on the right side of her cheek. We took her to the doctor, who immediately sent us to an ENT. It was a Friday and since she had eaten that day, he ordered an MRI for the following week. However, when she woke up the next morning, it had gotten much larger overnight. We took her to Children's Hospital on Sept. 25th and during the MRI, it was determined she had a mass the size of a hard boiled egg. After doing a biopsy, it was determined she had Rhabdomyosarcoma. A port was placed the following week and she was started on chemo. She underwent a year of chemo and also radiation treatments. The year was incredibly tough on her little body, but she made it through it was determined that she was NED when she finished treatment in September 2005. She started preschool that fall and enjoyed everything. She had follow up MRI and CT scans the next five year and everything looked good. Unfornately, in January 2010 her MRI showed a new mass in the same area as the original tumor. This time we took her to the Mayo Clinic for a second opinion regarding treatment options. The doctors determined that she would need another year of chemo, more radiation and surgery to remove the tumor. This was an incredibly difficult journey, but she once again made it through and after her surgery was NED. She finished chemo in January 2011 and went back to school full time for the remaining months of her 4th grade year. She had a fun summer and had follow up scans at Mayo on July 27th and was NED. In early August she started telling us she had a headache. Since she just had scans two weeks earlier, the Omaha doctors were treating her for a sinus infection. After being on antibiotics and still feeling so lousy, we took her back to Minnesota to see her doctors. On August 24th the MRI showed a 4 cm tumor in her brain. With all of the chemo and radiation she had already received, we were told there we no treatment options left for our precious child. On October 3, 2011 she earned her angel wings. Megan was a beautiful little girl with fought this beast with everything she had. Her smile and love for life was contagious to everyone who knew her. Her sense of humor got her through many challenging issues and she always looked on the bright side of life. Our hearts will forever have a whole in them as we'll never be the same without her in our lives. We miss her so very much and love her forever.

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