Honored Kid

Ashley N

Ashley N Kid Photo

Location

Rochester, NY, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

February 2010

Status

Passed away

Treated At

Golisano Children's Hospital, Rochester

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My Story

Ashley was diagnosed with a Pontine Glioma (Brain Stem Tumor) at 15 months old. She has been through 6 and 1/2 weeks of chemo and radiation, plus chemo 5 days a month, for a year. What a life changing event for her and us as a family to go through. Ashley is now over 3 years old and she is a true miracle. Ashley never let any of her treatments get her down. She was always smiling and happy to see her doctors and the visiting nurse. To this day, she loves going to the doctors. Ashley is full of love and happiness now a days. She loves going to preschool a couple days a week and has grown so much since starting. She also loves to be around her extended family and close friends. She is always smiling and giving hugs. Ashley has a close relationship with her grandmother and a couple of her great aunts. Ashley loves playing with her friends, she loves Strawberry Cake, Tinkerbell, and of course the Princess. By looking at her. you would never know the journey she has been through in her short life and she continues to shine. I want people to know that ANY child with cancer is just as important as an adult with cancer. They fight just as hard. We found out on October 20, 2012 that her tumor had started to grow again. We were all in shocked by this news becasue she was doing so well. The prognosis wasn't good at all. She went down hill so the doctors wanted to give her the beste qualilty of life they could while she was here so they decided to start chemo and add in radiation. Ashley started another round of radation on Novemer 5, 2012-December 12, 2012. Ashley recevies chemo everyother week. As you can imagine we were scared at the thought of losing her. But with all the prayers from our friends, family, and strangers she has done amazingly well. Even shocking the doctors. Who always hoped she would do well but weren't sure. She is back to walking, running, jumping and being herself. She does seem to be tired more and not eating a lot. But I will take those issues over what could have been. I don't know what the future holds for her but right now it is looking good. I know all too well that it can change in the drop of a hat. Ashley lost her fight on September 1, 2013. She fought an amazing fight. There isn't a minute/second/day that doesn't go by that I don't miss her. I would give the world to have her back in my arms. The only comfort I have is that she is a helathly little girl in heaven running, playing, singing and dancing. I know she is with me where ever i go. it means a lot to me to share Ashely's story with everyone.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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