Honored Kid

Evan D. Barberis

Age 20
Evan D. Barberis Kid Photo

Location

Whitefish, MT, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

July 2010

Status

In maintenance

Treated At

Providence Sacred Heart Medical Center & Children's Hospital

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My Story

Evan had just finished a great year of kindergarten in Whitefish, MT, when he was diagnosed with Philadelphia Chromosome ALL, a rare and high risk form of childhood leukemia. Although a bit on the shy side, Evan loved school and his classmates, always having lots of playdates and enjoying all the birthday parties. Evan loves to ski, hike the trails and mountains of Glacier National Park, swim, and dig carrots out his garden. He lives in a "tall" house in Whitefish with his Mom, Dad and three cats. Since his diagnosis, Evan had to leave his home for 10 months and relocate with his Mom to Spokane, WA for his treatment at Sacred Heart Children's Hospital. He endured an intense chemotherapy regimen like a champ, most days he felt well enough to take long walks, eat delicious foods, and get schoolwork done. This spring he has enjoyed a few days of skiing, loves his new bike with gears, and is even back in school part time. Evan still has more than a year of treatment to go, but each day he feels better and is looking forward to getting back to just being a kid, a very, very special kid. Evan still loves reading and science, and he wants to be a chemist/inventor when he grows up.

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