Liz was a typical 11 year old girl. She liked being with her friends, video games, and reading. She was active in Girl Scouts, and Tae Kwon Do. Liz was very bright, funny, and had excellent manners. She was kind to everyone, and especially good with small children. She was a typical pre-teen girl.
After she was diagnosed with Diffuse Intrinsic Pontine Glioma, she lost the skillfull use of her hands, the ability to walk, and suffered from double vision. The treatment with steroids and chemotherapy caused tremendous weight gain, with skin breakdown. She had open wounds on her belly, bottom, and under her arms which were slow to heal. She was still a sweet, bright, and fun child.
DIPG is a brain tumor which is inoperable, and no treatments have shown to be effective. Average life span from diagnosis is 9-12 months. To watch your child decline and suffer is indescribable pain. As Liz said, "I feel like I'm made of Legos and I'm being pulled apart."