Honored Kid

Haley T

Haley T Kid Photo

Location

Honolulu, HI, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

June 2009

Status

Passed away

Treated At

Children's Hospital Los Angeles Tripler Army Medical Center Kapi'olani Medical Center for Women and Children

Change your kid's logo

My Story

This is our sweet daughter Haley after her second brain surgery and in the midst of her cancer battle. She has a port in place under the skin on her chest for the injections and infusions of chemotherapy she endured up until the last months of her life. Regardless, she smiles. She was appreciative of every moment and every person who crossed her path. Although Haley was never the same after her first brain surgery, I believe she became even more magnificent. The cancer invading her brain was Medulloblastoma; brain and spinal cord cancer. In the small intensive care ward we watched in horror as within hours after surgery she lost her ability to move and speak. Paralyzed with fear, we thought she was dying. This was a side effect of her brain surgery; Posterior fossa syndrome. That night she suffered a stroke in my arms. She could not move, swallow or communicate, but she could scream. She would scream and cry for months. It would break our hearts. After a few weeks at Tripler the decision was made to airlift her to LA Children’s Hospital for intensive rehabilitation and to start radiation and chemotherapy. She was in-patient for 4 months. This little girl at 5 years old began a long and very hard battle for her life. She was so scared, so determined and she worked so, so hard. Incredibly, with the help of intensive therapy she learned to move again and to speak. Haley survived her year and a half of the hardest chemotherapy you could imagine and was declared cancer free. Cancer free!!!!! We celebrated and cried. Within only 6 months the cancer crept back into her spine and she relapsed. At her moment of relapse we knew Haley would lose her life. There is no cure for Relapsed Medulloblastoma. After a year and a half of horror... paralysis, chemotherapy, radiation and brain surgery.... we only had 6 months of hope. Our little girl continued to suffer. No child should ever have to suffer like she did. Another brain surgery resulting in epilepsy and constant chemotherapy… 5 years in total. Can you imagine 5 years of chemotherapy? Despite this, Haley epitomized love. She was sweet, empathetic and gave the biggest hugs. . She made the best of her life and she made our lives. With current drugs and treatments we were only given one chance to save her life. The treatment was unfathomable: brain surgery, radiation to her brain and spine and one and a half years of the hardest chemotherapy. She survived this horrific treatment and she was permanently disabled. The brain damage from her surgery and the 30 days of radiation to her brain caused a life-long decline in IQ. After this one chance for life, there was no hope. We were devastated. Haley lived the next three years of her short life on experimental chemotherapy. It gave her a chance to grow up. It had less side effects and her quality of life was improved. As a family, we looked for a way to save her and found St Baldrick's. Through them we worked  hard to raise money for childhood cancer research to find a new treatment that would save her life. Every year our family continues to support St Baldrick's in Hawaii. Haley helped shave many heads at this event. She loved the joy that came in knowing that this simple act of giving, shaving your head, saves lives. It saves the little lives of her friends and it makes living their lives better. St Baldrick's raises money for better treatment, less disabled kids, less side effects and more kids who make it to the next year. Life with our daughter was making the most of every minute we had been given.  There is nothing more painful than holding the sweetest little girl, your own little girl, in your arms as she takes her last breath. Thank you for those extra 5 years we had with our daughter. We remain proud of our daughter. Your support for new research allowed us precious time with her. It allowed us to have our family just that bit longer. There is no way to really say thank you for that. Haley found fun in everything she did and everything new she could do. Her biggest loves were stuffed animals, her dog Lovey and her friends and family. She was grateful, as we all are, for the amazing people who carried her and us, along this long, hard road. Thank you for helping these kids who fight cancer. Over 96% of the US National Cancer Institute's cancer research budget is designated for  adult cancers. Less than 4% is allocated to childhood cancers. LESS THAN 4%. Children suffer cancers that are different, more aggressive and poorly researched.  Our kids are worth MORE THAN 4. Without sufficient funding it's up to us, one donation at a time, to fund childhood cancer research. Thanks to St Baldrick's, we've got this. And thanks to you. Thank you for your support for childhood cancer research. 

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org