Honored Kid

Ethan K.

Ethan K. Kid Photo


Norristown, PA, US


Brain or spinal cord tumor

Date of Diagnosis

October 2009


Passed away

Treated At

The Children's Hospital of Philadelphia

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My Story

Just 8 weeks after he was born, Ethan was taken to the hospital for symptoms associated with water on the brain and was transferred to Children's Hospital of Philadelphia. After emergency surgery to relieve the intra cranial pressure, an exploratory MRI revealed a tumor at the base of his brain behind his left eye. Our family's worst fear was realized. On October 20th, 2009, neurosurgeons performed a resection of the tumor but could only remove about half. In addition, the difficult surgery resulted in several complications. After an agonizing week, the result of the biopsy indicated a rare, slow growing Level 1 cancer know as Desmoplastic Infantile Ganglioglioma (DIG). The path forward was to monitor the tumor's growth before performing more invasive forms of treatment. However, on November 25th upon Ethan's first follow-up MRI, the cancer was discovered to be a much more aggressive Level 4—the tumor had grown by 50% and cancer had spread throughout his CNS. At 5 months old, Ethan underwent his third round of chemotherapy. This wonderful, beautiful boy brought constant joy to us. Our family and friends are thankful for each day he has here with us.

The Childhood Cancer Ripple Effect

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