Honored Kid

Jordan M.

Age 20
Jordan M. Kid Photo

Location

Luling, LA, US

Diagnosis

Medulloblastoma

Date of Diagnosis

December 2007

Status

In treatment

Treated At

Tulane Hospital For Children

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My Story

After days of Jordan losing his balance and falling frequently, his parents brought him to the local ER in Thibodeaux, La. Jordan had a number of tests run on him and was then rushed to Tulane Medical Center. Here, Jordans family learned that Jordan had a tumor at the base of his head which would need to be removed immediately. This is where their journey with Medulloblastoma began. After a 10 hour surgery to remove the tumor, Jordan remained intubated and sedated in the PICU. Jordan developed hydrocephalous while still in the PICU and was taken to surgery for a shunt to be placed. After a few weeks, Jordan was moved to the regular Pediatric Unit and started radiation and chemotherapy to treat his tumor. Jordan received physical, occupational and speech therapy to help him get back to his pre-surgery self. He quickly became a fan of the playroom and still enjoys spending most of his time there when he is inpatient for chemotherapy. Jordan and his mom participated in the St. Baldricks event at Tulane last year and they actually got to shave the first head!! Jordan has been through many more shunt revisions and hospitalizations since then, but he is doing great and looking forward to his Make A Wish trip to Disney World in June!

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