Spotlighted in MrBeast's latest YouTube video, St. Baldrick's is joining Stand Up To Cancer, MrBeast, and Beast Philanthropy to help make the next SU2C Pediatric Cancer Dream Team possible.
Children's Healthcare of AtlantaJohns Hopkins Children's Center
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My Story
A small bump on his ear that was noticed after he ran into his bunk beds from playing, kept growing fast as we watched it get bigger over the weeks. After a week of watching it grow we had it checked out. Not sure what it was we were referred to specialists to see about removing it as it was getting angry looking. Doctors assured me that it didn’t resemble any pediatric cancers. As we were waiting for the referrals for insurance and the doctors office to create his medical record, my mom gut told me I couldn’t keep waiting. I tried to schedule as soon as I saw the referral approved but couldn’t. They said they needed his record created first even if they had the referral. The lady told me if I was that concerned to bring him into the ER to be evaluated during the day he would see the specialist on call and it would jump the process. By this time, myself and others around could see the bump growing as the hours passed so I took her advice. It did jump the process but they only did an ultrasound and deemed it an infected dermoid cyst and scheduled for removal a few weeks out due to the holidays. Although the tech wasn’t completely for sure but felt confident about it. As it kept growing I tried to get the surgery moved up sooner as he was having pain and it looking like it was going to the side of his face but no luck. Bump was removed and told it wasn’t a cyst but resembled fat tissue but irregular and they sent it to pathology. At our 4 week post op the doctor came in and said he got the results 20 minutes prior that it was in fact cancer and they did not clear margin. He was rushing on his phone to get us in with oncology and more imagines asap. I knew something wasn’t right watching it grow but trusted the medical personal who told me it wasn’t cancer a few times but in fact they were wrong and my mom gut knew. But i’m not a doctor. They did do everything to get us in and taken care of right away and any concern I had they listened. We got in for a second surgery and removed the rest and have clear margin now and thankful no treatments. I was told me if I hadn’t been persistent and trusted my gut we may not be in this outcome we are with best odds of no reoccurrence. I will always be a firm believer and advocate to moms to trust those guts if they feel something is off and don’t be afraid to question things. You are with your kids the most and know what is normal and not for your kid. We still have no answers as to how he got his kind of cancer as it’s not seen in kids that much. If parents see a bump and they see it not go away after a few days or gets worse at all go get it checked out! I always say it’s better to be safe then sorry. So now I want to help spread awareness and hope more research is done to help other kids.
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