Seth turned 9 October 1, 2016. His tumors were found October 31, 2016 after a few different appointments with different specialists. The went for an eye exam due to his reading level dropping. The optometrist was concerned about how his optic nerve was looking. Told us to go to the ophthalmologist. We scheduled with the ophthalmologist at Phoenix Children’s Hospital. From there we went to an optic nerve specialist, which who said we need an MRI. Scheduled the MRI between the date for the MRI Seth kept falling down. Our pediatrician said for us to take him into the ED at PCH. He was given his MRI and we were admitted into the ICU and told he had a couple tumors. One in the third ventricle the other in the thalamus He has his first brain surgery November 2, 2016 for the biopsy. His neurosurgeon let us know his tumors are inoperable and he has hydrocephalus. He created a new tunnel to drain the fluid due to the tumor blocking the area the fluid should drain naturally. We met with his oncologist two weeks later when the biopsy results came in. We were heard the words no parent ever wants to hear it’s cancer. From there everything went fast. His port was placed that week and treatment started the next day. The team at PCH Clinic for cancer and blood disorders were absolutely amazing. Explained everything in detail as many times as we needed to understand. Seth went through 3 years of infusion chemotherapy. Unfortunately it was not working at that point we were offered to do a study meditation. Seth was on the study medication for three years. At this point Seth is in the 8th grade. He had stable MRI’s for six months. His oncologist said we could keep going or he can stop and we can monitor. Seth’s dad and I allowed Seth to make the call. We wanted him to have some say in his treatment since for six years he had none. He decide to stop treatment. The tumor’s stayed stable for almost a year. He was in his freshman year of high school when we had to make yet again another decision to restart chemotherapy. Seth is now a senior in high school and has been back on oral chemotherapy almost three years. He is stable with the medication as of today. Seth has gone through three brain surgeries, many stays in the hospital, and a million pokes. He has faced all of this with an amazing sense of humor and grace. Never grumpy or unwilling to participate in his treatment. Chris Oless has been a big part in Seth’s journey along with so many other outstanding Dr.s and nurses at PCH. What I have written here is only a very high level overview of Seth’s journey. To truly understand all of it is more than I can put into words. Our family is so grateful for all the love and support we have received at PCH and organizations like Saint Baldrick’s. Thank you just doesn’t seem like enough.