Honored Kid

Brandon P.

Brandon P. Kid Photo

Location

Spencerport, NY, US

Diagnosis

JMML

Date of Diagnosis

August 2007

Status

Angel

Treated At

Golisano Children's Hospital, Rochester

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My Story

Brandon relapsed 3x's since last years event. He had another transplant in the Spring of 2008 an he relapsed again over the Summer. Brandon was admitted Aug 27 2008 with an infection of his eyelid tissues. We spent some time in PICU and were transferred to the floor and pre pared for a 3rd transplant and daddy was his donor. Brandon receieved daddys cells on his 4th b day Oct 08 2008. A week later we were again taken to PICU for breathing issues and intubation. Brandon battled many infections and his cancer JMML transitioned to AML. Brandon passed away on Nov 1 2008 surrounded by loving family and friends. He was able to be extubated on Oct 30 in the late evening. Brandon was able to talk to us and watch some of his favorite movies. He also was able to be dressed up for Halloween as Thomas the Tank Engine. He was able to be pulled around in his red wagon for a few walks. He passed away cancer free. He died from aspergelous fungal pnemonia in both lungs. We miss him terribly. But he is no longer in pain. God received a beautiful little angel on Nov 1 and I gained a wonderful guradian angel. God bless you little buddy. Mommy loves you Brandon is 3 years old. He loves the movie Car's and anything Thomas the Tank. In July he was diagnosed with a rare childhood cancer JMML. He had 2 seperate weeks of Chemo over the summer and went into Strong late Sept for TBI and more chemo followed by a stem cell transplant. His older half brother Anthony was his donor and he had his transplant on his sister Brittney's 10th B day 10/2/07. He went into septic shock on his 3rd B day 10/08/07 from E coli and strep bacterias. Brandon remained asleep and breathing by ventalator for 4 days and we remained in the PICU for a week. Soon after returning to the BMT floor we went home. He is in remisson. Although he does have some of his marrow returning there is still no leukemic cells present in his marrow. Brandons donor blood chimerisms are going back up and are at 96% with DLI treatments as needed and he is still neutropenic. You would never be able to tell if you saw him. He is happy and playfull and the low counts are not slowing him down very much. We do not go out except for clinic appts. But he has tons of toys and movies to keep him busy at home.

The Childhood Cancer Ripple Effect

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