Honored Kid

Savannah H.

Savannah H. Kid Photo

Location

Las Vegas, NV, US

Diagnosis

Acute myeloid leukemia (AML)

Date of Diagnosis

July 2023

Status

In treatment

Treated At

Children's Hospital Los Angeles

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My Story

Savannah was born on July 6th, 2023. Her birth was highly anticipated by her father, brothers, and myself. We were overjoyed knowing that we were welcoming a little girl into this world. Savannah came into this world via C-section on July 6th and moments after her birth our world turned upside down. I laid on the operating table as the room went silent, I frantically began asking what was wrong with my baby and I was meekly told everything was ok but my instincts as a mother told me otherwise. When I first saw and held my daughter aside from noticing how perfect she was I noticed she was born with bruise like markings all over the trunk of her body. The marking she was born with stumped the labor and delivery floor and the pediatricians office. On Savannah's second day of life she received a biopsy on her markings that were rapidly fading. By the time we left the hospital three days later her markings had completely disappeared. She was diagnosed with blueberry muffin baby syndrome and the biopsy would give us the answers to the underlying cause. One week after her biopsy we got a frantic phone call from the dermatologist Dr. Cotter that performed the biopsy (and ultimately diagnosed our girl) letting us know that acute myeloid leukemia cells were found in her biopsy and that we needed to be seen by the oncologist immediately and we had an appointment that afternoon. What went from a normal day as a new family of five quickly turned into our worst fears. At our first oncology appointment her diagnosis was confirmed (AML) and we were told that Savannah would need to be immediately admitted to the picu to begin treatment and we were to prepare to be there for an undetermined amount of time. Her father and I headed out of that appointment feeling as if our world had stopped spinning. We went home, packed, held our boys for awhile, and walked into the hospital knowing that the second we walked through those doors our lives would never be the same. Savannah was admitted to our local hospitals children’s unit on July 16th at just 10 days old to start her journey. July 17th her father and I made the decision that her cancer needed to be treated by a specialist in the leukemia field and that she needed a higher level of care than our local hospital could offer. On the morning of July 19th Savannah and I said goodbye to her father and brothers and were transported via medical flight to CHLA. Savannah’s father and brothers quickly joined us at CHLA where on her 14th day of life she underwent anesthesia, received a spinal tap, and bone marrow biopsy for the first time. At CHLA we met Dr. Paul Gaynon, the man that I credit to saving my daughters life. For the first time since her birth we were given hope. The leukemia was present in her bone marrow but Savannah was otherwise healthy and thriving so Dr. Gaynon made the decision to delay treatment and allow her to grow to give her the best chance at remission. On September 1st we were admitted at CHLA and Savannah begin round one of chemotherapy. This round was rough and she endure several brutal side effects including typhlitis and mucositis. Twenty-nine days later we were released to go home for the week. Being home was such a blessing. On October 5th Savannah underwent her 4th bone marrow biopsy, and we were admitted on October 12th to begin round two of treatment. Savannah is currently on her road to remission. She is a little warrior and has been our fighter since birth. We’ve been blessed to be treated by the most knowledgeable and compassionate team at CHLA. Savannah’s current biopsy results show no evidence of active leukemia however we will continue treatment and complete four rounds of chemotherapy. Our sweet girl is well on her way to remission and will be ringing the bell in no time. 

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