Honored Kid

Hendrix L.

Age 7
Hendrix L. Kid Photo


Gulfport, MS, US


Brain or spinal cord tumor

Date of Diagnosis

July 2022


In treatment

Treated At

Children's of Alabama

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My Story

Hendrix was your normal, spunky 6 year old who loves sports and spending time with family. On 7/14/2022, Hendrix had a dizzy spell and passed out at summer camp. We assumed it was the heat, in which he recovered. On 7/17/2022, Hendrix had another dizzy spell, but in the presence of family. He took hours to recover, but we were swimming, so we assumed he had an ear infection and would call the doctor first thing the next morning as the 17th was a Sunday. The doctor sent us Monday to the local ER in Gulfport, MS to have a neurological exam. Everything looked great, however, they wanted to send us to a bigger hospital (Women’s and Children’s Hospital in Mobile, AL) for more extensive testing. We were told by Gulfport that they made an accidental finding near his cerebellum that was probably there since birth, but has nothing to do with his situation now. They told us to inform Mobile of their findings, even though they would see it when they do their MRI. Once we got to Mobile, they had the Neurologist come see us. Hendrix was so low on their radar that the Neurologist said he will do an MRI to rule out that this is probably just swimmers ear and that he was 99.9% sure we would go home following. The MRI was pushed back to late in the day on Tuesday, 7/19/2022. Hendrix was brought back to our room from his MRI, and immediately following him were MANY doctors requesting to speak to my husband and I in a different room from Hendrix. We were told Hendrix has DIPG and given 6-9 months live!

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