Honored Kid

Ezra G.

Age 9
Ezra G. Kid Photo

Location

Kansas City , MO, US

Diagnosis

Wilms or other kidney tumor

Date of Diagnosis

July 2016

Status

No evidence of disease

Treated At

The Children's Mercy Hospital

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My Story

On July 23rd, 2016, Jarot and I received the worst news of our lives. After finding a firm spot in Ezra's abdomen, the ER doctors at Children's Mercy Hospital told us it was a tumor. At that point, they thought it might be one of two different cancers, either Wilms or Neuroblastoma. After confirming that it was most likely Wilms, they scheduled him for surgery to remove his cancerous right kidney. Thankfully his surgery was a success, and the surgeon was able to remove Ezra's tumor and kidney completely. Once we got comfirmation from the biopsy that we were looking at stage 2 Wilms, they had a course of treatment for us. Ezra received his first round of chemo before we left the hospital. He had 19 rounds of chemotherapy, and we are were so grateful to find out in December that his scans showed no evidence of reoccurrence or metastatic spread. Even though we received good news on December, our lives for the next several years will involve scans, X-rays, and tests to watch for signs of relapse. This is something we wouldn't wish on anybody else.  You can read our cancer journal here: https://www.caringbridge.org/visit/ezragustin Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. Thank you for your donation!

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