Honored Kid

Zach S

Age 22
Zach S Kid Photo

Location

Cairo, GA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

November 2006

Status

No evidence of disease

Treated At

Arnold Palmer Hospital for Children Shands Hospital for Children

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My Story

After a prolonged series of seemingly unrelated and erratic symptoms, Zach’s pediatrician uttered the ominous phrase, “There’s a mass and it has to come out.” Words no parent should have to hear. It was the fall of 2006 when we found out our 5 year old little boy had a brain tumor. In a state of shock, we leaped into a whirlwind that included seven hours of surgery to remove Zach’s brain tumor. The pathology report was meduloblastoma. That brought another surgery for port placement to help with the anesthesia and meds needed for the 30 rounds of radiation and nine rounds of chemotherapy Zach endured next. Along the way Zach had cerebellar mutism to deal with as a side effect of his brain surgery. His five year old mind was trapped in an infant-like body. He couldn’t talk, eat, drink, or move with purpose. All he could do was scream and cry. Countless hours of physical, occupational, and speech therapy followed. When Zach made it home he began therapeutic horseback riding. It was three months before Zach could talk or walk again, and both were a tremendous labor. Zach had made it a long way in his journey back to wholeness, but he had a long way to go. Now Zach is a busy 9 year old. He is in a regular second grade classroom at school. After school he is busy each week with homework, physical therapy, therapeutic horseback riding, karate, building Lego’s and when the weather and schedules allow playing golf. Numerous follow up mri’s and tests continue to show no evidence of active disease in Zach’s growing strengthening body. Zach has been an immense blessing to our family in his battle with pediatric cancer. Sometimes you don’t realize how good you have it because you don’t realize how bad it could be. Because we have seen how bad it can be, we know how great we have it. www.caringbridge.org/visit/zacharysingletary

The Childhood Cancer Ripple Effect

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