Honored Kid

Amber Moosvi

Amber Moosvi Kid Photo

Location

Des Plaines, IL, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

November 2011

Status

Passed away

Treated At

Ann & Robert H. Lurie Children's Hospital

Change your kid's logo

My Story

Amber Moosvi was born May 24, 1995 prematurely, weighing only one pound. She had been fighting for her life ever since. She spent three months in Neonatal Intensive care. She had many complications from her prematurity that she slowly overcame and beat every odd against her. When Amber was thirteen years old, symptoms began to arise again, and she was treated at the Mayo Clinic in Minnesota, since no physicians at any hospitals in our area could diagnosis and treat her. After months in Minnesota, a diagnosis of Gastroparesis was diagnosed and a grueling medication and treatment plan were put into place. Including being homeschooled for three years due to extreme pain and her almost daily visits to a rehab facility downtown Chicago. Amber finally overcame this disease and in the fall of 2011, returned to High School as a Junior. She had straight A grades, and was very popular among her peers. Everything was going quite well for Amber. At the end of October 2011, Amber began complaining of excruciating Sinus pain. She was taken to her physician several times, as well as our local Emergency Department. Each time we were told it was just a mild sinus infection and to just wait for the antibiotics to begin working. On November 2, 2011, her pediatrician finally ordered an MRI of Amber’s brain. Within hours, we were rushed to Chicago’s Children’s Memorial Hospital where she was immediately incubated on a breathing machine and had emergency brain surgery just minutes later. We were told that if she even survived this surgery she would never walk or talk again. Amber had a Malignant, Glioblastoma Multiforme, Brain Tumor. Stage Four Cancer. She was only 16 years old. Amber was in-patient in the hospital receiving rehabilitation services, yet another brain surgery, a shunt inserted in her brain as well as a port. She then had to re-learn how to do everything, including even how to dress herself. She underwent daily Radiation Treatment and oral Chemotherapy. When she was finally discharged from the hospital, she continued out-patient rehabilitation services, oral chemotherapy, and bi-weekly IV Chemotherapy. Amber had a younger 15 year old sister Paige, who she adored and is cared for by her single mother, who had been forced to resign from her 16 year career to care for Amber. Her Father offers zero emotional, or monetary support. Through all this, Amber kept a smile on her face and encouraged other brain tumor warriors, she even had the opportunity to meet with another fighter from California. She told them to NEVER EVER GIVE UP and to keep fighting. It had been her mission to spread awareness about Brain Tumors and fight for a cure.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help Give Kids a Lifetime

Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

Support lifesaving childhood cancer research today.

Photo submission policy

Please read the photo submission policy and accept below.

By submitting a photograph of yourself on www.StBaldricks.org, you agree to the following terms and conditions for submission of your photograph:

We strongly encourage all users to submit a before and after photo, so that donors and fellow participants can easily recognize and relate to one another.

Any photo containing cartoons, comics, celebrities, nudity, pornography, sexually explicit images or any copyrighted image (unless you own the copyright) is not permitted. This is because photos of celebrities and cartoon or comic images are generally copyrighted by the owner.

Uploading images of other people without their permission is also prohibited.

This photo submission policy applies to StBaldricks.org users. The St. Baldrick’s Foundation reserves the right to review all photos and to remove any photo for any reason at our sole discretion. If you see a photo on StBaldricks.org that you believe does not conform to this policy, email to WebQuestions@StBaldricks.org