Honored Kid

Sebastian Major

Age 20
Sebastian Major Kid Photo

Location

Champaign, IL, US

Diagnosis

Neuroblastoma

Date of Diagnosis

October 2011

Status

Relapsed, on Hospice

Treated At

Cincinnati Children's Hospital Medical Center Comer Children's Hospital St. Louis Children's Hospital

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. In October 2011, I was diagnosed with Stage IV Neuroblastoma, a cancer that starts in the nerve cells, and is rarely found in children over the age of 4. I am nearing the end of a long, difficult road. My initial treatments were at St. Louis Childrens. I have endured 6 rounds of high-dosage chemotherapy, a bone marrow transplant, 18 bone marrow biopsies, a major surgery to remove a large mass from my abdomen, and countless tests and scans. I have had 2 rounds of mibg radiation therapy in Cincinnati, OH, and 40 rounds of palliative radiation at Carle Hospital in Champaign, IL. I also received treatment at Comer Children's Hospital in Chicago, where I had a team of oncologists who specialize in Neuroblastoma. We were unable to improve my disease. In July 2014, following a hospitalization due to complications from chemo, I decided to stop treatment. I've been on hospice care ever since then.

The Childhood Cancer Ripple Effect

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Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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