Honored Kid

Levi M.

Age 19
Levi M. Kid Photo

Location

New Castle, VA, US

Diagnosis

Brain or spinal cord tumor

Date of Diagnosis

September 2004

Status

Cancer free

Treated At

Carilion Clinic Children's Hospital

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My Story

UPDATE:
Levi is now 17 years old!  He is a 13 year survivor of Stage 4 High Risk Medulloblastoma. He has many daily struggles but he faces them with a gorgeous smile and huge heart ❤️. 
Levi is my wonderful, handsome 13 year old son. He was diagnosed with high risk medulloblastoma in September 2004, when he was 4 1/2 years old. Levi has had three brain surgeries, multiple other surgeries, 6 weeks of radiation and 10 months of the most difficult chemo regimen you could imagine. He went into surgery asking for something to drink and came out mute and paralyzed. He has relearned every skill - swallowing, eating, talking walking, sitting up unassisted, focusing his eyes, laughing and being a normal boy. Levi looks "almost" normal now - you may notice a slight delay in his speech or see him stumble a little when he walks. Radiation has caused learning difficulties and hearing loss. He has to take a shot of growth hormone every night. But he doesn't let any of that get him down! He laughs and laughs and laughs. He tell cornball jokes (What's a cat's favorite color? Purrrrple). He loves chicken nuggets and red Mountain Dude (Dew). He loves SpongeBob, Shrek and Scooby Doo. No child should have to go through what my Levi did. Not only do I want to raise money for a CURE, I want to help researchers find better ways to treat childhood cancer, that doesn't rob the child of being a CHILD.

The Childhood Cancer Ripple Effect

Who's Honoring Me

Help kids take childhood back from cancer — support lifesaving cancer research today.

Children who are fighting or have fought cancer inspire others to be part of the Foundation's mission — to support the most promising research to find cures for childhood cancers and give survivors long and healthy lives.

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