Honored Kid

Levi M.

Levi M. Kid Photo


Moneta, VA, US


Brain or spinal cord tumor

Date of Diagnosis

September 2004


Passed away

Treated At

Carilion Clinic Children's Hospital

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My Story

Levi went home on 12/29/2019 surrounded by his loving family. The treatments for his medulloblastoma caused a secondary sarcoma that he bravely fought for 16 months. He will never be forgotten. 

UPDATE:Levi is now 17 years old!  He is a 13 year survivor of Stage 4 High Risk Medulloblastoma. He has many daily struggles but he faces them with a gorgeous smile and huge heart ❤️.  Levi is my wonderful, handsome 13 year old son. He was diagnosed with high risk medulloblastoma in September 2004, when he was 4 1/2 years old. Levi has had three brain surgeries, multiple other surgeries, 6 weeks of radiation and 10 months of the most difficult chemo regimen you could imagine. He went into surgery asking for something to drink and came out mute and paralyzed. He has relearned every skill - swallowing, eating, talking walking, sitting up unassisted, focusing his eyes, laughing and being a normal boy. Levi looks "almost" normal now - you may notice a slight delay in his speech or see him stumble a little when he walks. Radiation has caused learning difficulties and hearing loss. He has to take a shot of growth hormone every night. But he doesn't let any of that get him down! He laughs and laughs and laughs. He tell cornball jokes (What's a cat's favorite color? Purrrrple). He loves chicken nuggets and red Mountain Dude (Dew). He loves SpongeBob, Shrek and Scooby Doo. No child should have to go through what my Levi did. Not only do I want to raise money for a CURE, I want to help researchers find better ways to treat childhood cancer, that doesn't rob the child of being a CHILD.

The Childhood Cancer Ripple Effect

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Infants, children, teens and young adults are depending on us to find cures for childhood cancers — and to give survivors long and healthy lives.

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