Honored Kid

Charlotte S.

Age 11
Charlotte S. Kid Photo

Location

East Northport, NY, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

March 2018

Status

In maintenance

Treated At

Steven and Alexandra Cohen Children's Medical Center

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My Story

My journey began with the Flu. Diagnosed 3x within a 12-week period and each time, recovering took longer and longer, never fully gaining my strength and stamina. Following a visit with a local infectious diseases doctor, I was instructed to proceed to Cohen Children's Medical Center and placed in isolation on Saturday, March 10, 2018. Following 4 days of observation, exams and tests, there finally was a diagnosis. On the afternoon of March 13, 2018, the doctors told me and my parents that I had B-Cell Acute Lymphoblastic Leukemia (B-ALL).


I was told that my leukemia was the most common of the pediatric cancers, was caught early and my prognosis for full recovery was very good. Mine and my family's lives changed in a matter of seconds. My parents and the hospital staff assured me that everything was going to be alright. And not for one minute did I ever feel alone or not supported. Everything was explained, all my questions were answered. Family and friends were called. Arrangements made to ensure I was going to be taken care of.


Treatment would start immediately. My Oncologist and Physician’s Assistant outlined the treatment. I remained in the hospital for my first 2 ½ weeks of treatment and the then home and to start my outpatient phase. I was going back to the hospital on a daily basis in the beginning. Chemo almost every day, with short breaks based on the treatment road map. On top of the outpatient visits, there were pills to be taken day and night, to help with the nausea, constipation, prevention of sores in my mouth, plus the oral chemo pills and antibiotics. It was a lot.


I wanted to graduate with my 5th grade class in June. Staying on top of my studies in order to graduate with my class was accomplished with the help of my tutor. On July 7th, I was told that my leukemia was in remission, and that working towards maintenance could begin. I started the 6th grade with the help of 4 new middle school tutors, keeping up with the new curriculum. I reached maintenance on February 8, 2019. I am looking forward to going back to school in late February, the first time in 11 months! My treatment is still on-going through August, 2020 (2.5 years after the initial diagnosis).


Thank you to all that participate in a St. Baldrick’s shave event and everyone that makes a donation.


Charlotte

The Childhood Cancer Ripple Effect

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