Honored Kid

Arabelle T.

Age 5
Arabelle T. Kid Photo

Location

Las Vegas, NV, US

Diagnosis

Acute lymphoblastic leukemia (ALL)

Date of Diagnosis

September 2021

Status

In maintenance

Treated At

Cure4TheKids

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My Story

Thank you for supporting me and the more than 300,000 kids worldwide who will be diagnosed with cancer this year. By sharing the gifts of your time, talent and money with the St. Baldrick’s Foundation, you're supporting research to give all kids with cancer a better chance for a cure. Arabelle ws first diagnosed on September 16, 2021, at the Cure4TheKids foundation. It came as a thunderclap when the doctor announced that Arabelle has Acute Lymphocytic Leukemia (ALL) and we would start treatment tomorrow. We went home and cried and started to prepare for the journey ahead. The next morning, Arabelle went in for surgery to get a PICC line implanted and started her chemotherapy. We stayed in the hospital for the next four days. Over the next few months, we got into a routine with cleaning the PICC line, giving her medications, and visiting the clinic. We adjusted to our new "normal" though it was rough, especially when she was on steroids. She would wake us up in the middle of the night and order food like steak or quesadillas. It was rough but we adjusted as all families that go through this horrible ordeal do. We had periodic hospital visits and stays on the 6th floor of Summerlin Hospital getting to know the nurses very well. Arabelle especially like the horse carriage they had and she would ride it around wearing her Disney princess dresses waving to the nurses. They gave her the nickname "Warrior Princess". Giving Arabelle the medications was very difficult because we had to crush the pills and mix it with apple juice to get her to take them. One night, I decided to see if she would swallow a pill whole. I gave her the pill and then gave her some water and she swallowed it like a champ. That made our lives a little easier but she stills fights us sometimes not wanting to take her medicine. She eventually does but its heart breaking hearing her cry and whine that she does not want to take her medicine and knowing that it is literally poison but it is for her long term health. Arabelle soon started losing her hair as is very common with the treatment, hence this charity event. When she had lost most of her hair, her father gave Arabelle and her brother, Nikolas, get some hair clippers and had them shave his head so she would not feel alone. It was a very emotional time and Nikolas shaved half of his head. Arabelle is currently in maintinance and is scheduled to end her treatment in November 2023! We thank all of our family and friends for their help and support during this journey.

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