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Hero Fund

Mighty Micah's Mission Fund


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The Mighty Micah's Mission Fund aims to raise awareness and improve treatment options for children diagnosed with neuroblastoma. As neuroblastoma patient Micah and his family know all too well, these kids need more effective and less-toxic treatments. We invite you to join Micah’s mission to develop exciting new cancer-fighting tools.
2018
$9,178
Funds Raised in 2018
2017
$11,723
Funds Raised in 2017
$62,944
Total Funds Raised
Since 2014

When Micah was diagnosed with cancer at 15 months old, our family barely knew anything of pediatric cancer, let alone the disease that would immediately become the central focus of our lives: neuroblastoma.

We knew nothing about the brutal treatment that neuroblastoma patients endure every day around the world.

Shortly after Micah was diagnosed, his oncologist told us that we were about to endure the most difficult year of our lives. The standard treatment plan for his type of disease includes chemotherapy, surgery, radiation, and immunotherapy. Stubborn disease as well as side effects and complications brought on by treatment meant that Micah’s plan also included additional therapy and medications. On top of the immediate effects of treatment, we also worried about the long-term effects of chemotherapy, radiation, and the overall treatment plan.

The oncologist was right that Micah’s treatment was the most difficult thing we had ever faced. She was, however, wrong about the duration. He did indeed endure a year of difficult treatments, and he was declared to be nearly disease-free a little more than a year after treatment began. But the tenacity of his disease stretched out treatment to a year and a half. During the very last week of his planned treatment, at age 2½, a relapse was discovered in Micah’s leg.

There’s no standard treatment plan for relapsed neuroblastoma, and no known cure. We had been told early on that less than 10 percent of relapsed patients with Micah’s type of disease - high-risk neuroblastoma - survive. Although we were nervous what that would mean for our family’s future, we were more angry that any family has to face that kind of news. A less than 10 percent chance for a few more years of life is not good enough for a child facing neuroblastoma or any cancer. We knew that we couldn’t do much about our anger, but that the best way to address it was to help change the critical lack of funding for pediatric cancers.

Micah's team successfully treated not only that first relapse, but a second relapse as well. After nearly 2½ years of almost-constant treatment, Micah was declared to have no evidence of disease for the third time. However, the aggressive nature of his disease meant that neither we nor his doctors were prepared to stop treatment. Micah remains on a maintenance therapy to increase his chances of remaining disease-free.

Every step of Micah’s treatment - especially since his first relapse - has depended heavily on researchers who have worked to develop treatments that are less harmful and more effective and whose work continues today. Micah has been involved in several studies seeking both to keep him disease-free and to provide data to help guide future research. The Mighty Micah’s Mission Fund was established to support the researchers and doctors who are working to better understand neuroblastoma, how to treat it, and how to minimize the often-brutal side effects caused by the current standard of care.

Please join us in supporting research that will allow future neuroblastoma patients to have more and better options to treat their disease.

Mighty Micah's Mission Fund Highlights & Happenings

Filling the Funding Gap

All types of childhood cancers combined receive only 4% of U.S. federal funding for cancer research. There’s a gap to be filled to help these kids.

Your Support Means So Much

These friends and family members helped us raise funds for childhood cancer research in honor of Micah! See the 2016-2017 list here.

Kate's Blog

Micah's treatment has included multiple Phase I trials. Read more about how we decided that they were right for him.

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Where does the money go?

Donations given to Mighty Micah's Mission Fund go directly to the St. Baldrick’s Foundation to fund lifesaving childhood cancer research around the world. The Foundation is guided by a Scientific Advisory Committee, comprised of leading experts in the childhood cancer community, to ensure that every dollar makes the greatest impact for kids with cancer.

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 Who's involved

These people make us smile - they’re the doers and money-raisers on behalf of Mighty Micah's Mission Fund. They’re shaving their heads, hosting events, starting fundraisers and more to make childhood cancer research possible.

See who’s raising money

2018 Teams for Mighty Micah's Mission Fund

Micah's Minions Team Photo
    Micah's Minions
    • Nason's Beer Hall @ The Pendry Hotel - Venue Pending
    • San Diego, CA
    • 6 participants
    • $7,601.55 raised

    Get involved your own way:

    Start your own St. Baldrick’s head-shaving event to raise money on behalf of our Hero Fund! You’ll be paired with a staff member who will walk you through every step of the process, and you’ll have fun knowing you’re doing a great thing for kids with cancer.

    Register to shave your head and raise money for our Hero Fund at any St. Baldrick’s event happening around the world! Not finding an event near you? Register as a virtual shavee and shave your head anytime, anywhere.

    Head-shaving not your thing? You can start a fundraiser to raise money for our Hero Fund with St. Baldrick’s in a way that interests you! Like biking? Bike a marathon. Like baking? Start a cookie baking fundraiser… You get the picture.

    Need help? Email us at Funds@StBaldricks.org

    Thank you to our donors

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