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Hero Fund

Lilbug’s Legacy

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Lilbug’s Legacy was created to honor our Lilly who passed away at just 4 years old after her 3-year battle with alveolar rhabdomyosarcoma. Lilly was an inspiration and hero to everyone who knew her. While her life was cut short by cancer, she never let it affect the way she lived. She was full of joy, love, silliness, style, and HOPE. Lilly never quit fighting, and never let her disease define who she was. She defeated her cancer three times, but the fourth battle was more than her little body could handle. While we HOPE a cure is found, we also HOPE to find gentler therapies and treatments to fight this awful disease. We MUST do better!!!
Funds Raised in 2021
Total Funds Raised
Since 2020

HOPE. It is what kept us going thru Lilly’s 3-year battle with alveolar rhabdomyosarcoma, a tissue cancer originally found near her left eye. HOPE that one day we would not have to worry about the common cold putting her in to the hospital because her immune system was compromised from chemo treatments and the effects it had on her little body. HOPE that all the chemo drugs and radiation treatments she received would not have the effects the doctors had warned us about. HOPE that one day she would be cancer free. But even after cancer took Lilly from us, we still have HOPE.

Our HOPE is that research will find gentler chemo therapies for children who face their own cancer battle. We HOPE that research will one day find a cure. We hang onto the HOPE that childhood for many children doesn't require long hospital stays away from family, friends and the everyday joys of being a child. We continue to fight for HOPE today. HOPE that other families can avoid the painful road we've walked as a family.

Research for childhood cancers are important, necessary, but poorly funded. That's why we're reaching out to you. Our HOPE is to help “fill the gap” in that funding thru our St. Baldrick’s, Locks for Lilly event. We'll shave heads in solidarity with children who have lost their hair after brutal treatments and we'd love your financial & moral support as we fight to give HOPE to other families like ours. Thank you for your generous support!

Lilbug’s Legacy Highlights & Happenings

Lillian’s Caringbridge Blog

We invite you to learn more about Lillian and her treatment for rhabdomyosarcoma by reading her Caringbridge blog.
Filling The Funding Gap

Filling the Funding Gap

Learn about the funding gap that impacts childhood cancer research and how St. Baldrick’s is trying to fill it.

What Is Alveolar Rhabdomyosarcoma?

Learn more about Alveolar Rhabdomyosarcoma on our blog!

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Where does the money go?

Donations given to the Lilbug's Legacy Fund go directly to the St. Baldrick's Foundation to fund lifesaving childhood cancer research around the world. The Foundation is guided by a Scientific Advisory Committee, comprised of leading experts in the childhood cancer community, to ensure that every dollar makes the greatest impact for kids with cancer.


Who's involved

These people make us smile - they're the doers and money-raisers on behalf of Lilbug's Legacy for alveolar rhabdomyosarcoma. They're shaving their heads, hosting events, starting fundraisers and more to make childhood cancer research possible.

See who’s raising money

Get involved your own way:

Start your own St. Baldrick’s head-shaving event to raise money on behalf of our Hero Fund! You’ll be paired with a staff member who will walk you through every step of the process, and you’ll have fun knowing you’re doing a great thing for kids with cancer.

Register to shave your head and raise money for our Hero Fund at any St. Baldrick’s event happening around the world! Not finding an event near you? Register as a virtual shavee and shave your head anytime, anywhere.

Head-shaving not your thing? You can start a fundraiser to raise money for our Hero Fund with St. Baldrick’s in a way that interests you! Like biking? Bike a marathon. Like baking? Start a cookie baking fundraiser… You get the picture.

Need help? Email us at Funds@StBaldricks.org

This event is private.

Private events are for people at the company, organization, school, etc., where the event is taking place. Please don't crash the party.

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