Showing 1-20 of 132 results
John Gates M.D.
Funded: 12-01-2017 through 11-30-2018
Funding Type: Infrastructure Grant
Institution Location: Madera, CA
Institution: Valley Children's Healthcare

This grant funds a Nurse Practitioner for the the Childhood Cancer Survivorship Program. The program also provides critical patient data for survivorship researchers.

Andrea Orsey M.D.
Funded: 07-01-2017 through 06-30-2018
Funding Type: Supportive Care Research Grant
Institution Location: Hartford, CT
Institution: Connecticut Children's Medical Center

The survival rates of pediatric cancers have dramatically improved over the past 40 years due to aggressive treatment regimens, which have side effects. Anthracyclines are one class of chemotherapy drugs that have been used to treat more than 190,000 childhood cancer survivors but cause risk of cardiovascular disease. Connecticut Children's team of oncologists, cardiologists and endocrinologists has developed a clinical practice guidelines to prevent and recognize early cardiovascular disease in pediatric cancer survivors. Dr. Orsey is testing their scoring system among childhood cancer patients from a database and in the clinic. She anticipates that the scoring system will allow doctors to standardize the way they treat patients so that cardiovascular disease is prevented or recognized and treated early in order to decrease heart disease in childhood cancer survivors.

Jordan Gilleland Marchak Ph.D.
Funded: 07-01-2017 through 06-30-2018
Funding Type: Supportive Care Research Grant
Institution Location: Atlanta, GA
Institution: Emory University affiliated with Aflac Cancer Center, Children's Healthcare of Atlanta

Children and adolescents with cancer and their families are at increased risk for psychosocial problems that can contribute to poorer health and quality of life, and it has been recommended that pediatric cancer centers develop programs to screen patients and families for psychosocial risk. The majority of pediatric cancers centers do not have practices in place to effectively and routinely screen all patients and families for psychosocial difficulties, with time and resources being acknowledged as barriers to implementation. Dr. Gilleland Marchak is developing a novel, patient-friendly technology to screen for psychosocial risk and evaluating its use at a large pediatric cancer center. Study outcomes will include data related to feasibility and acceptability of electronic screening, as well as efficacy in identifying families in distress and connecting them with family support team members to address problems in real time. By successfully leveraging technology to reduce barriers to universal psychosocial screening, we can improve communication between oncology providers and families regarding critical mental health, neurocognitive, and social issues that may negatively impact pediatric cancer treatment and health outcomes.

Kathy Ruble Ph.D.
Funded: 07-01-2017 through 06-30-2018
Funding Type: Supportive Care Research Grant
Institution Location: Baltimore, MD
Institution: Johns Hopkins Children's Center affiliated with Johns Hopkins University School of Medicine

Children treated for leukemia often have difficulty with school and learning. These children are also known to report sleep disturbances. With the MaxLove Project Fund St. Baldrick's Supportive Care Research Grant, Dr. Ruble is measuring sleep with a home monitor, and testing survivors for specific learning difficulties. She will then examine the relationship between sleep and cognitive function in this population. Dr. Ruble hopes in the future that this will allow researchers to design treatments for sleep disturbances that will ultimately help with learning and school. The MaxLove Project Fund honors the survivorship journey of Max Wilford who was diagnosed with a brain stem tumor at the age of four. Despite several surgeries and an intense treatment protocol, Max is now able to be a “regular” kid due in large part to integrative therapies he received.

Hilary Marusak Ph.D.
Funded: 07-01-2017 through 06-30-2018
Funding Type: Supportive Care Research Grant
Institution Location: Detroit, MI
Institution: Wayne State University affiliated with Children's Hospital of Michigan

Cancer-related pain greatly compromises quality of life, and can increase disease morbidity, mortality, and healthcare costs by reducing children's compliance to medical procedures. The burden of cancer-related pain does not end when treatment concludes: many survivors of childhood cancer report cancer-related pain well into adulthood. Thus, there is a critical need for interventions that can reduce pain during and after children's treatments for cancer. Dr. Marusak is testing whether a martial arts therapy that centers around mindful breathing and meditative techniques can reduce pain and the underlying brain mechanisms in young cancer patients and survivors.

Hazel Nichols Ph.D.
Funded: 07-01-2017 through 06-30-2020
Funding Type: St. Baldrick's Scholar
Institution Location: Chapel Hill, NC
Institution: University of North Carolina at Chapel Hill affiliated with UNC Children's Hospital

Women who are diagnosed with cancer before 40 are often concerned about whether they will be able to have children in the future. Women can freeze their eggs or embryos (called fertility preservation) to help protect their fertility, but these services may not be widely available. Dr. Nichols has looked at how often women in North Carolina have children after cancer treatment and whether the health of their babies is different from women without cancer. She is further examining the use of fertility preservation after diagnosis and its association with birth rates and outcomes. This research will provide information to improve the long-term health of AYAs with cancer.

Janet Deatrick Ph.D., FAAN
Funded: 07-01-2017 through 06-30-2018
Funding Type: Supportive Care Research Grant
Institution Location: Philadelphia, PA
Institution: University of Pennsylvania affiliated with The Children's Hospital of Philadelphia

Dr. Deatrick is developing family support and education materials for maternal caregivers of young adult survivors of childhood brain tumors to improve their quality of life and quality of life of the survivors. Training in Problem Solving (TIPS) for Caregivers, leverages past research, eHealth, and Bright IDEAS family problem-solving intervention (an evidence-based intervention for caregivers of children newly diagnosed with cancer) to target challenges identified by maternal caregivers to their family management. TIPS is targeted to caregivers with “condition-focused FM” (family life organized around the special needs of the survivor). Using the prototype session developed in partnership with maternal caregivers, Dr. Deatrick will work with them to design the web-based intervention. She will develop other sessions of TIPS and adapt them to technology, which will be used “live” online with a health care provider and online with interactive homework sheets, videos, and other resources. Future research will involve fathers and other caregivers, survivors, and other family members.

Brandon McNew M.D.
Funded: 01-01-2017 through 12-31-2017
Funding Type: Infrastructure Grant
Institution Location: Des Moines, IA
Institution: Blank Children's Hospital

This grant supports a pediatric psychologist, nutritionist, and physical therapist who work together to evaluate and treat childhood cancer survivors during regularly scheduled long-term survivorship appointments.

Arunkumar Modi M.B.B.S., M.P.H.
Funded: 01-01-2017 through 12-31-2017
Funding Type: Infrastructure Grant
Institution Location: Iowa City, IA
Institution: University of Iowa Hospitals & Clinics affiliated with University of Iowa Children's Hospital

This grant supports a Data Manager who organizes medical records and enrolls past patients into the Passport for Care program, which gives childhood cancer survivors crucial access to their medical information and healthcare guidelines, so that they can transition from pediatric healthcare providers into the adult survivorship program.

Pinki Prasad M.D.
Funded: 01-01-2017 through 12-31-2017
Funding Type: Infrastructure Grant
Institution Location: New Orleans, LA
Institution: Children's Hospital-New Orleans

This grant supports research staff who are developing a Transition Clinic for Adolescents and Young Adults. The grant also supports a Nurse Educator who is dedicated to aiding pediatric and teenage cancer survivors in successfully transitioning to adult health care services.

Robert Vasquez M.D., Ph.D
Funded: 01-01-2017 through 12-31-2017
Funding Type: Infrastructure Grant
Institution Location: New Orleans, LA
Institution: Ochsner Clinic Foundation affiliated with Ochsner Medical Center

This grant supports a Nurse Coordinator who works with new patients in the combined Adolescent and Young Adult and Cancer Survivor Clinic. The Nurse Coordinator also works as a guide throughout the process of scheduling visits, and provides information and resources throughout the time that the patients attend the Clinic.

John Gates M.D.
Funded: 12-01-2016 through 11-30-2017
Funding Type: Infrastructure Grant
Institution Location: Madera, CA
Institution: Valley Children's Healthcare

This grant funds a Nurse Practitioner who enrolls and provides services for patients in the Childhood Cancer Survivorship Program. The program also provides critical patient data for survivorship researchers.

David Van Mater M.D., Ph.D.
Funded: 12-01-2016 through 11-30-2018
Funding Type: Infrastructure Grant
Institution Location: Durham, NC
Institution: Duke University Medical Center affiliated with Duke Children's Hospital & Health Center

This grant supports construction of a REDCap database that will capture valuable clinical information on demographics, diagnosis, and treatment information for adolescent and young adult (AYA) cancer patients. The grant also supports a Patient Care Navigator who maintains the REDcap database and works to coordinate resources with other departments. This database helps track patients over time, giving more information to researchers and providing better long-term care for childhood cancer survivors.

Sogol Mostoufi-Moab M.D.
Funded: 07-01-2016 through 06-30-2017
Funding Type: Supportive Care Research Grant
Institution Location: Philadelphia, PA
Institution: The Children's Hospital of Philadelphia affiliated with University of Pennsylvania

Young age at diagnosis and intense therapy result in multiple late effects for Neuroblastoma survivors. The majority of High-Risk Neuroblastoma HR-NBL survivors have striking growth failure. Dr. Mostoufi-Moab is investigating the mechanism of growth failure in high-risk neuroblastoma survivors. Dr. Mostoufi-Moab is employing state-of-the art imaging measures of the growth plate to study and understand the mechanism of growth failure in high-risk neuroblastoma survivors, and target future intervention trials.

Anne Kirchhoff Ph.D.
Funded: 07-01-2016 through 06-30-2018
Funding Type: Research Grant
Institution Location: Salt Lake City, UT
Institution: University of Utah affiliated with Huntsman Cancer Institute

Childhood cancer survivors can have problems with their lungs due to their cancer treatment. Dr. Kirchhoff is completing the first study to examine how air pollution affects the health of childhood cancer survivors.

Robert Vasquez M.D., Ph.D
Funded: 01-01-2016 through 12-31-2016
Funding Type: Infrastructure Grant
Institution Location: New Orleans, LA
Institution: Ochsner Clinic Foundation affiliated with Ochsner Medical Center

This grant supports a dedicated Adolescent and Young Adult (AYA) cancer survivorship program at Ochsner, to ensure that more kids can be treated on clinical trials, often their best hope for a cure.

Zhihong Wang M.D.
Funded: 01-01-2016 through 12-31-2016
Funding Type: Infrastructure Grant
Institution Location: Detroit, MI
Institution: Wayne State University affiliated with Children's Hospital of Michigan

This grant funds research personnel to ensure that more kids can be treated on clinical trials, often their best hope for a cure.

Karim Sadak M.D.
Funded: 01-01-2016 through 06-30-2017
Funding Type: Infrastructure Grant
Institution Location: Minneapolis, MN
Institution: University of Minnesota - Twin Cities affiliated with Masonic Children's Hospital

This grant supports a Clinical Research Associate to ensure that more kids can be treated on clinical trials, often their best hope for a cure.

John Gates M.D.
Funded: 12-01-2015 through 06-30-2017
Funding Type: Infrastructure Grant
Institution Location: Madera, CA
Institution: Valley Children's Healthcare

This grant helps provide necessary resources for the Childhood Cancer Survivorship Program at this institution. The program provides survivors the support, treatment and education they need to prevent and address these late effects.

Late Effects After High Risk Neuroblastoma – The LEAHRN Study Member
Funded: 07-01-2015 through 06-30-2018
Funding Type: Consortium Research Grant
Institution Location: Birmingham, AL
Institution: University of Alabama at Birmingham affiliated with Children's of Alabama

This institution is a member of a research consortium which is being funded by St. Baldrick's: Late Effects After High Risk Neuroblastoma – The LEAHRN Study. For a description of this project, see the consortium grant made to the lead institution: University of Chicago, Chicago, IL