Diagnosed with a rare sarcoma when he was a toddler, Honored Kid Alan passed away five years ago. With his chubby-cheeked grin and bright personality, the 2014 St. Baldrick’s Ambassador has inspired all of us — and as his mom writes in this blog, Alan’s impact continues to be felt in a big, brilliant way. Read on to learn how…
Dr. Nino Rainusso meets with Alan’s family, plus Hilly the bear, a stuffed panda purchased in Washington D.C. to represent Alan’s lost opportunities.
Four years ago, we established a Hero Fund with the St. Baldrick’s Foundation to raise money for sarcoma research in Alan’s memory. Last July we were thrilled to share that the fundraising we had done through Alan’s Sarcoma Research Fund had given us the opportunity to name a grant.
Dr. Nino Rainusso of Baylor College of Medicine at Texas Children’s Hospital would be named the Alan’s Sarcoma Research Fund St. Baldrick’s Scholar for his work in identifying and examining the most difficult-to-treat cancer cells from patients at Texas Children’s.
From CAR T cell therapy in May to a bone marrow transplant in June, over the past few weeks we’ve been following the tremendous journey of Honored Kid Zach Swart. Now we bring you another angle — a closer look at the St. Baldrick’s-funded research that has changed Zach’s life.
St. Baldrick’s researcher Dr. Kevin Curran meets with a patient at Memorial Sloan Kettering Cancer Center.
A couple months ago, Zach Swart went through yet another medical procedure; one more to add to an already substantial history of biopsies and blood draws.
But this procedure was different than a typical needle poke.
Honored Kid Zach has faced leukemia three times since he was 6 years old. On Wednesday, after 10 years of fighting, he hopes that this is it — that a bone marrow transplant will put him in remission for good. Learn about his tremendous journey and why children’s cancer research is important to him.
Zach clowns around during treatment.
Wednesday is a big day for 15-year-old Zach. After two relapses and years of childhood lost to cancer, it’s a new start.
Dr. Noah Federman first decided to become a doctor because he wanted to help people. Mission accomplished, Dr. Federman. Over his years as a physician, he’s helped countless children with cancer, including cancer survivors like 2013 St. Baldrick’s Ambassador Emily. Read on for more about Dr. Federman, his St. Baldrick’s Scholar award and what he envisions for the future of childhood cancer research.
Dr. Noah Federman meets with a patient.
Dr. Noah Federman first met Emily back at the very beginning, soon after she discovered a persistent bump on her right leg — the first sign of a bone cancer called osteosarcoma.
The St. Baldrick’s Scholar has been there for Emily ever since, through the ups and downs of treatment, through her surgery and even now during survivorship, as she prepares to celebrate five years cancer free.
It’s a proud moment for Dr. Federman.
He became a doctor to make a difference in the lives of children like Emily — to help them beat cancer, get out of the hospital, and grow up healthy and happy.
“Our son would not be with us today if it weren’t for St. Baldrick’s,” says Phineas’ dad, Carlos. Read on to see how research saved the little boy’s life.
VIDEO: Phineas’ Story >
On a mountain bike ride with a friend, 9-year-old Phineas was sailing along when he decided to take a risk and pedal over a bridge not meant for bicycle traffic. He wiped out in a big way.
But without so much as a single tear, he picked himself up, dusted himself off, and got back on the bike.
Compared to what this boy had been through two years before, that was nothing.
Today is National Cancer Survivors Day and in celebration, we are bringing you the survivorship story of 2013 Ambassador Emily, who was diagnosed with osteosarcoma as a 16-year-old. Now nearing five years cancer free, she’s a huge advocate for kids’ cancer research. She wants to see all kids with cancer leave the childhood cancer world behind — for good. Read on for more about Emily, her treatment and its effects, and what it’s like to be a survivor.
Emily in 2013, during her treatment for cancer (left) and Emily last month (right) in New York City, which she’s made her home after graduating from New York University.
Emily lives in two worlds.
In one, she just graduated from New York University, is cruising the Adriatic Sea over the summer, and snagged her dream job in television production.
The other world is different.
When Dr. Monica Gramatges meets a kid with cancer, she often breaks the ice by talking about art. That’s because she loves art and explored art therapy as a career before becoming a doctor. Read on to learn more about this St. Baldrick’s Scholar’s unique path to doctorhood and how she’s helping kids with leukemia.
When Dr. Monica Gramatges was a medical student, she volunteered as an art teacher at MD Anderson Cancer Center in Houston, Texas. There, she met an amazing little girl with leukemia and Down syndrome.
And that’s when something clicked. That’s when she decided she wanted to be a pediatric oncologist.
“They’d lost their hair, they weren’t feeling great, they were tired and nauseous, but they were still wanting to draw and paint, and were so creative,” she said. “These were just kids wanting to be kids, despite everything that was happening to them.”
St. Baldrick’s Scholars Dr. Alex Huang and Dr. Agne Petrosiute are studying how switching off a protein could lead to new treatments and cures for kids with brain tumors. Read on for more about their unexpected discovery, its implications for immunotherapy, and why Dr. Huang compares himself to those fuzzy little bears in Star Wars.
Dr. Agne Petrosiute (left) and Dr. Alex Huang study how the immune system can be harnessed to fight pediatric brain cancer.
Dr. Alex Huang likens himself and his colleague, Dr. Agne Petrosiute, to Ewoks battling the Death Star.
“We are the Ewoks that found the controller on this planet, and all of a sudden the Death Star cannot put up the shield anymore,” he said. “And so now, Luke Skywalker can go in there and blow it up.”
It may seem like a curious explanation, but it fits.
Every day, Dr. Jessica Pollard harnesses her love of science and her passion for research to fight for kids with AML. Read on for more about the longtime St. Baldrick’s Scholar and what she’s doing to give kids with cancer the childhoods they deserve.
St. Baldrick’s Scholar Dr. Jessica Pollard does research on AML, one of the most common childhood cancers.
Dr. Jessica Pollard is all about analyzing prognostic factors. It floats her boat and puts the pep in her step. In fact, sometimes she burns the midnight oil doing just that.
But what exactly is this analyzing prognostic factor business that she likes so much?
In plain English, it’s examining certain things about a patient that can help tell her whether a person will recover from their cancer or relapse.
“My husband thinks I’m a geek, but you know, it keeps me going,” Dr. Pollard said.
Her geekery also saves lives.
From MRIs to CT scans, kids with brain cancer get pictures taken of their tumors all the time. St. Baldrick’s Scholar Dr. Peter de Blank wants to get more out of those pictures, so that all children can lead long, healthy lives. Read on for more about this St. Baldrick’s Scholar and the exciting work he’s doing with a new imaging technology.
Getting scans done is a routine part of life for a kid with cancer, like 2013 Ambassador Emily. Dr. Peter de Blank wants to use new technology to get more out of scans like these.
For Dr. Peter de Blank, a picture is not only worth a thousand words — a picture can save a life.
As a St. Baldrick’s Scholar at Case Western Reserve University, Dr. de Blank is studying how a new radiographic tool, called magnetic resonance fingerprinting, or MRF, might improve outcomes for kids with cancer.
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