Advocacy

Congress’s Focus on Palliative and Hospice Care Shines New Light on a Variety of Issues for Pediatric Cancer Patients and Families

by St. Baldrick's Foundation
November 27, 2019

About 10 years ago, the St. Baldrick’s Foundation expanded its research portfolio to include funding for supportive care grants. Since then, it has funded more than 40 innovative studies in this area. Supportive care, according to the National Cancer Institute, refers to care given to improve the quality of life of patients who have a serious or life-threatening disease.

Our supportive care grants have encompassed a wide variety of topics, including studies focused on psychosocial screening, survivors’ nutrition and physical activity, chemotherapy-induced neuropathy, and mindfulness training — just to name a few. These grants are in sync with needs across the spectrum of cancer in children and adolescents/young adults (AYA) from diagnosis through active treatment to post-treatment survivorship and life-long health surveillance. As many have said, the cancer experience doesn’t end when treatment ends. Supportive care can improve the quality of life for its entire duration.

For this National Hospice and Palliative Care Awareness Month, we’ve decided to look at some of the reasons why this category of care is so very important to pediatric cancer.

kid holding sign
Honored Kid, Tacey, showing her support for PCHETA, at the 2019 Action Days in Washington, D.C..

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Advocacy

The Mommas Mean Business – And Ten Years Later, They’re Still Raising Money for Pediatric Cancer Research

by St. Baldrick's Foundation
May 23, 2019

Editor’s Note: We’re delighted to give the floor to Rebekah, who is our guest blogger and a leader of the 46 Mommas. In this blog post, she shares what she has learned about helping kids with cancer, and keeping her own sisterhood strong.

A collage showing 9 group photos of the 46 Mommas group.

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Advocacy

Childhood Cancer Action Days 2019: Scott and Nancy Head to Washington

by St. Baldrick's Foundation
April 16, 2019

The Alliance for Childhood Cancer Action Days in Washington, D.C., is an opportunity for members of the childhood cancer community – from kids and their families to health care professionals and volunteers – to advocate for childhood cancer issues before Congress.

St. Baldrick’s Honored Kid, Scott, a 10-year-old whose cancer is in remission, attended Action Days with his mom Nancy and has provided us with the following report on his experiences in Washington.

Collage showing Scott and other childhood cancer advocates in Washington, D.C.
Scott (left) attended Childhood Cancer Action Days in Washington, D.C., in late March.

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Advocacy

Speak Up for Kids’ Cancer: January 2020

by St. Baldrick's Foundation
January 21, 2018

We hope you are having a great start to the new year! Read on for legislative updates, upcoming meetings and events, and ways to get more involved as we hit the ground running in 2020.

kid holding up sign

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