Alyssa takes a selfie before shaving her head for childhood cancer research.
When Honored Kid Alyssa Greenwell says she’s a medical mystery, she’s not kidding.
“I really am a medical mystery,” she said. “My legs are in a medical journal.”
Alyson Weissman is a dedicated St. Baldrick’s shavee℠, a member of the 46 Mommas and the founder of a St. Baldrick’s Hero Fund which raises crucial funds for lifesaving research. Why does she do so much? Because Alyson is also the parent of a cancer survivor. Read on for more about what being a survivor really means, how she conquers fear and why she works so hard to fund kids’ cancer research.
Alyson shaves her head with St. Baldrick’s as her son holds her hand.
My son Jared was diagnosed with Hodgkin lymphoma in 2007. This year, in July, he will be a nine-year cancer survivor.
To most parents, the first day of school is a big deal in a good way. For the parents of kids fighting cancer, however, the first day of school can be the start of one more scary, uncharted journey. But it doesn’t have to be. Read on for the story of two cancer fighter classmates who were embraced by their school, where their cancer journeys became a valuable lesson in acceptance and the realities of childhood cancer.
Alex and Scott sit together during a meeting at the clinic.
Every day, the first-graders at Triangle Math and Science Academy used to break out the Clorox wipes to clean their desks. The scrubbing of their workplaces became so routine that it’s now second nature to some of the kids who attend this charter school in North Carolina.
But to Liz Ferm and Nancy Lenfestey, it means the world.
That’s because both of their sons were in that class, and their classmates started the routine to keep them safe.
For many kids with cancer, their lives are full of hospital visits, tests and needle pokes — even after treatment ends. Our social media specialist, Alison Sutton, joined Honored Kid Chase L. and his parents at his latest checkup. She recounts their day below.
At 8 years old, you’re supposed to be learning multiplication, mastering your states and capitals, and locking down your best friend.
For Chase, he was learning what being diagnosed with non-Hodgkin lymphoma meant.
Birthdays are a time of celebration for most kids — a big party with presents, cake and balloons. But for Ambassador Cheyenne and her family, her upcoming birthday holds much more meaning. Read on to see what Cheyenne’s mom, Amy, is reflecting on this year.
I’ve always thought of birthdays as a momentous occasion to celebrate life. With Cheyenne’s 11th birthday coming up, a little more than one year after her childhood cancer diagnosis, this celebration of life is taking on an entirely new meaning.
Last month, Ambassador Aaron finished his first semester at college and came home for a clinic visit to make sure he was still in remission. His mom, Dana, shares their good news and her hopes for 2016.
Aaron with his parents, Dana and Greg.
On January 30, one week before her 10th birthday, Cheyenne was having trouble breathing. After a trip to the local ER, she was air lifted to Children’s Hospital Colorado in Denver.
Her doctors discovered a large, life-threatening tumor blocking her airway. Soon after, Cheyenne was diagnosed with T cell lymphoblastic lymphoma.
Two and a half years ago, Ambassador Aaron was just finishing treatment for non-Hodgkin lymphoma. He’s still in remission, and this week he’s starting his freshman year of college over 300 miles away from home. He shares this quick update.
Aaron stands with his family at his high school graduation ceremony.
Ambassador Aaron is shaving tomorrow for the first time since he was diagnosed with childhood cancer. Now in remission, he reflects on what braving the shave means to him now.
After shaving his head for St. Baldrick’s four years in a row, Aaron was diagnosed with Burkitt non-Hodgkin lymphoma in 2012. He’s now in remission.
After taking a year off from shaving my head, I’ve decided to brave the shave again!
Dr. Matthew Barth is a St. Baldrick’s Scholar at the University of Buffalo in Buffalo, New York. He is studying ways to help kids with non-Hodgkin lymphoma who don’t respond to treatment.
What is non-Hodgkin lymphoma?
Non-Hodgkin lymphoma is a cancer of white blood cells called lymphocytes. Non-Hodgkin lymphoma generally involves the lymph nodes, but can also involve many other organs, including the bones, bone marrow, liver, spleen, brain and skin.
There are many types of non-Hodgkin lymphoma. Children tend to have more aggressive forms of the disease, while adults frequently have less aggressive forms. Non-Hodgkin lymphoma is very rare in children younger than 3 years old and is seen more often in adolescents.
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