What Is MIBG Therapy?
Current treatment options including chemotherapy, surgery, radiation therapy, and stem cell transplantation are powerful, but not powerful enough. New therapeutic options are needed.
Technology Facilitates International Collaboration of Neuroblastoma Research
Spotlight on St. Baldrick’s funded International Neuroblastoma Risk Group (INRG) Database, co-chaired by Dr. Susan L. Cohn, University of Chicago.
International collaboration is crucial to meaningful progress and advances in childhood cancer research. Right now, all over the world, research is being done by the best and brightest investigators, but sharing information across continents or even between institutions is not an easy task. Imagine if the findings from researchers in Japan were made available to researchers in Australia and perhaps even combined with research being done in the U.S.? What could this mean for kids with cancer?
Importance of Clinical Trials for AYA Cancer Patients
By St. Baldrick’s infrastructure grant recipient Brandon Hayes-Lattin, M.D.
Each year, about 70,000 adolescents and young adults (ages 15-39) are diagnosed with cancer in the United States. Despite the increase of childhood cancer survival rates in the last two decades, adolescent and young adult (AYA) patients have had minimal improvement in cure rates. Contributing to this statistic is the AYA population’s low numbers of participation in clinical research trials.
Clinical trials are an essential part of treatment for cancer patients of all ages because they provide the most innovative drugs and therapies. According to the National Comprehensive Cancer Network (NCCN), only about 10 percent of 15 to 19-year-old patients and 1 to 2 percent of 20 to 39-year-old patients enroll in clinical trials, which can directly affect their outcome.
A Young Childhood Cancer Patient Gets a Fighting Chance
Liam with Kelly Clickner, RN, CCRC Clinical Research Associate at Albany Medical Center.
By Dr. Vikramjit Kanwar, pediatric oncologist and St. Baldrick’s infrastructure grant recipient
When Liam was born, he appeared to be a healthy baby. He spit up a little more often than expected, but neither of his parents were worried until he began vomiting almost continuously. They took him to the ER at Albany Medical Center and a CT scan showed his liver riddled with tumor.
What Cancer Cannot Do
Bryson gave this handwritten copy as a gift to a woman at their church when she was diagnosed with cancer — one small example of the care and love he freely gave to others. This same handwritten copy was handed out at Bryson’s Celebration of Life ceremony, after he passed away from childhood cancer when he was 8 years old.
2012 Research Priorities Summit
The St. Baldrick’s Foundation held its second Research Priorities Summit in New York, the weekend of January 7-8, 2012. Nineteen distinguished childhood cancer research experts attended, volunteering their time and expertise to advise the Foundation’s board and grants staff on funding priorities.
The Summit was co-moderated by two nationally recognized leaders in pediatric oncology, William Carroll, M.D. of New York University and Holcombe Grier, M.D. of Dana-Farber Cancer Institute.
Effects of Childhood Cancer on Adolescents and Young Adults
By St. Baldrick’s infrastructure grant recipient Dina Hankin, Ph.D. The patient’s name has been changed in this story out of respect her family.
Beth was diagnosed with childhood cancer when she was 16 years old. Now 25, Beth has successfully graduated college and completed a teaching credential program, but she continues to be challenged by the emotional impacts of her cancer journey.
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