2015 Ambassador Daisy relapsed with medulloblastoma in September 2015. Since then, she’s been through surgery, radiation and chemo. Then she went in for scans to see if the treatment was working. Daisy’s mom, Natalie, shares the results.
Daisy smiles as her mom, Natalie, gives her a kiss.
It had been 92 days since we heard the devastating news of Daisy’s relapse of medulloblastoma. Her brain and spine MRI was only a few days away, and emotions were high.
Her doctor at the children’s hospital told us that if the scan showed any progression of disease, treatment would stop. Our beautiful 9-year-old daughter would be put on palliative care.
How could words like that sink in?
As we get ready to welcome our new Ambassadors, we checked in one last time with our 2015 Ambassadors to reflect on the past year and how much the St. Baldrick’s community means to them.
Just days after learning her cancer had returned, Ambassador Daisy went in for surgery to remove the tumors on her spine. Her mom, Natalie, shares this update, along with a sweet video message from Daisy to you.
Last Thursday, Ambassador Daisy went to the hospital for a routine MRI. The next day, her parents received the worst possible news. “The second time is worse,” her mom, Natalie, writes. “So much worse than the first time because this time we are aware of the brutal realities … the cruelness that is childhood cancer.”
Even though Ambassador Daisy’s scans show no evidence of disease, the evidence of her brain tumor treatment is something she lives with every day. “I think the hardest thing for me to grasp is that it took her smile,” her mom, Natalie, says.
Daisy finished treatment for medulloblastoma, a pediatric brain tumor, last year. Her facial muscles are partially paralyzed from the surgery to remove her tumor.
Last Thursday marked two years since Daisy was diagnosed with medulloblastoma, a type of pediatric brain tumor. Now with no evidence of disease, Daisy is gaining new strength and confidence every day. Her mom, Natalie, reflects on how far Daisy’s come since that day in April 2013.
Daisy during and after treatment for medulloblastoma, a type of pediatric brain tumor.
Ambassador Daisy’s mom, Natalie, likes to keep her daughters connected to their Chinese culture. Part of that is celebrating Chinese New Year! But when Daisy was diagnosed with childhood cancer, it was hard for the little girl to enjoy the holiday. As this Chinese New Year celebration comes to a close, Natalie explained how this year was special — and a whole bunch of fun.
Daisy is the picture of fierce concentration as she paints a panda during Chinese New Year’s.
“While Daisy was in treatment, we couldn’t celebrate Chinese New Year,” Natalie said. “We were too worried about being out in public with so many germs, since Daisy’s immune system was compromised.”
Daisy and her family are raising money for childhood cancer research! Help their team “Hope For Daisy” reach its $8,000 goal >
This year was different. After intense treatment for medulloblastoma, Daisy is out of the hospital, done with her therapy and shows no evidence of disease.
Daisy’s signature belly laugh was big, full of happiness and irrepressible. Since the 8-year-old completed treatment for medulloblastoma, a brain tumor, that easy, frequent laughter is slowly making a comeback.
The treatment and surgery left Daisy with hearing loss, paralyzed facial muscles, and nerve damage, but her spirit has remained intact.