Most six-year-old boys spend their time thinking about toys, candy and getting to school on time. Few need to worry about their health at such a young age, and even fewer face the uncertain future following a cancer diagnosis.
Fighting cancer was Zach’s world when he was six. In 2007, he was diagnosed with acute lymphoblastic leukemia, or ALL. Over the next four years, Zach underwent intense and physically demanding treatments like chemotherapy and radiation.
With the holiday season upon us and another year drawing to a close, it’s a great time to reflect on some of the major research accomplishments of doctors and scientists whose work on childhood cancers benefited from the support of St. Baldrick’s donors like you.
There’s much to be thankful for. All things considered, 2018 was a remarkably successful year for childhood cancer research, with much of that success spurred on by grants funded by St. Baldrick’s. Of course, none of this would have been possible without our generous donors.
Dr. Kohanbash’s cutting-edge research on ependymomas is supported by a Hero Fund in memory of Henry Cermak, who passed away in 2008 after a long, 2-year fight that included many surgeries, chemo regimens, and 93 rounds of radiation.
Just over three years ago, the St. Baldrick’s Foundation created its Robert J. Arceci Innovation Award. Designed to give innovative childhood cancer researchers unfettered freedom to explore, it has become one of the most unique and impactful initiatives in pediatric cancer funding.
Today, St. Baldrick’s is pleased to announce that Dr. Laura Broutier of Lyon, France, is the newest recipient of the award.
Dr. Laura Broutier of Lyon, France, the newest recipient of the Robert J. Arceci Innovation Award.
Last year, an estimated 174 million Americans – or more than half the total US population – shopped online or in stores between Thanksgiving and Cyber Monday. In only 5 days, online sales totaled nearly $15 billion. It’s safe to say, then, that many Americans saved money pursuing big bargains that weekend.
If you’re saving money during this year’s Black Friday or Cyber Monday events, consider passing it on this Giving Tuesday, Nov. 27. You can do that right now by visiting our dedicated Giving Tuesday donation page.
The St. Baldrick’s Foundation has announced its 2018 Infrastructure Grant recipients. In total, the grants amount to more than $1.7 million and will be spread across 29 US-based institutions.
For more than a decade, Dr. McLean has been participating in head-shaving events with the St. Baldrick’s Foundation. That’s right – not only does Dr. McLean help fight cancer at Wake Forest Baptist Health in Winston-Salem, N.C., he’s also one of many researchers who help raise money for childhood cancer research by having his own head shaved clean.
It’s a fact the friendly doctor laughs off by pointing out he doesn’t have a lot of hair to shave away in the first place.
“The first time I shaved my head, I was nervous,” Dr. McLean joked. “But then I did it, and I quickly realized, you know, it’s not that big of a deal – my hair is pretty short anyways.”
Dr. Tom McLean, winner of a 2018 Infrastructure Grant, has shaved his head for St. Baldrick’s 10 times.
An ependymoma is a cancerous tumor that emerges in the brain or anywhere along the spine, from the neck all the way down to the lower back. These tiny tumors take shape in cells found in the spinal cord or the brain’s ventricles, cavities that contain fluid responsible for cushioning our brain and preventing injury.
Ependymomas tend to start out very small and grow slowly over time – sometimes many years – meaning they can be hard to catch. Early symptoms range from seizures to headaches and blurry vision. Because there are many other conditions with these same symptoms, it can be difficult to diagnose ependymomas, especially in kids, who may have trouble explaining how the issue affects them.
Dr. Kohanbash’s St. Baldrick’s grant is supported by a Hero Fund in memory of Henry Cermak, who passed away in 2008 after a long, 2-year fight that included many surgeries, chemo regimens, and 93 rounds of radiation.
Imagine being born with an oversized tongue that makes breathing and eating a constant chore. Imagine starting life with an oversized pancreas that pumps an excessive amount of insulin, creating a wide range of unexpected health issues.
In fact, try to imagine being born with an abnormally large organ of any kind – tongue, liver, kidneys – and how this might affect your life.
Children with Beckwith-Wiedemann syndrome, otherwise known as BWS, live with these challenges every day. And it’s not the only health concern they face.
They’re also at a much higher risk of developing childhood cancer.
Honored Kid Micah is ready for his close-up during a hospital stay in 2015, when he was taking part in a St. Baldrick’s-funded clinical trial at Children’s Hospital of Los Angeles (CHLA) for neuroblastoma, a type of childhood cancer.
For kids with cancer and their families, clinical trials mean hope. Clinical trials offer a chance for survival when all other options are exhausted. They offer kids in treatment and survivors the possibility of a better future with fewer side effects. Most of all, for all kids with cancer today and in the future, clinical trials help scientists get closer to cures.
With your help, St. Baldrick’s has been an essential part of this lifesaving research phase since 2005 — every St. Baldrick’s donor has helped make these trials possible for more than 100,000 children with cancer.
Honored Kid Madelyn was diagnosed with DIPG in 2010. A fashionista with a big spirit and an equally big heart, Maddy was an inspiration to those around her. She passed away in November 2011 after an 18-month battle with DIPG.
No child has ever survived a diffuse intrinsic pontine glioma brain tumor, commonly called DIPG.
This aggressive pediatric brain cancer multiplies in the brainstem, which controls some of our most basic functions for living – our breathing, heart rate, blood pressure and ability to swallow and speak. And because the cancer is so intertwined with its delicate surroundings, DIPG is often inoperable.
A DIPG diagnosis and a zero percent survival rate has remained the reality for kids and families for decades.
But what if there might be hope? What if that hope came from within the child’s own body?
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