Whether on the mat or under the clippers, Honored Kid Juliana lives with passion — and a brain tumor will never take that away from her. Learn more about Juliana, her diagnosis and its impact, and why she shaved her head for kids like her.
Juliana competes at a gymnastics championship before her diagnosis.
Growing up, I was active and always full of energy. To fuel my need for excitement, my parents enrolled me in gymnastics. I soon discovered that gymnastics was my calling. After winning many state titles and high-level regional and national titles, I was on my way to becoming a USA Gymnastics Elite gymnast.
In May of 2015, I started having difficulties with my vision and balance.
When St. Baldrick’s Fellow Dr. Adam Green learned about high-grade gliomas and met kids diagnosed with the brain tumors, he knew he had to help. And today he’s doing just that. Read on for more about Dr. Green, his exciting research, and how St. Baldrick’s helped him make it happen.
Dr. Adam Green in his lab at the University of Colorado with his lab members, from left to right: Rakeb Lemma, Dr. Green, John DeSisto and Patrick Flannery. Dr. Green’s research is funded in part by the Luke’s Army Pediatric Cancer Research Fund, a St. Baldrick’s Hero Fund created in memory of Luke Ungerer, a little boy who died of brain cancer.
Dr. Adam Green distinctly remembers the first time he gave a family the news that their child had an aggressive, fatal brain tumor. It was an experience that’s hard to forget.
Tracey Blackmore lost her son Brooks to brain cancer last year. In this guest blog, she describes how she both grieves for her little boy and gives back in his honor.
Tracey and Brooks laugh together.
There are so many different ways to deal with the grief of losing a child. There is no “right” way, but I knew what MY way had to be. I knew I had to wake up everyday and choose happiness in my son’s honor.
Brooks Blackmore was only 5 years old when he was diagnosed with two stage 4 brain tumors on June 13, 2015. We were told that they were inoperable, there was no cure and radiation was the only hope to prolong his life.
Honored Kid Luke was just 3 years old when an MRI scan revealed a large tumor in his brain. When Luke passed away seven months later, his parents chose to honor Luke by starting a Hero Fund in his name — and they’ve been working hard to help fund childhood cancer research ever since. This fall, they got to see first-hand how their hard work is paying off. Luke’s dad, Scott, tells the story.
You can learn more about Luke’s Army by visiting his Hero Fund.
This is a story about love.
A story about joy and happiness, fear and anger and sadness — about faith and, ultimately, hope.
This story begins with one tiny drop of water in the vast ocean of life.
Honored Kid Atticus was diagnosed with a rare form of brain cancer called choroid plexus carcinoma (CPC) after a scan revealed a tumor the size of a tennis ball. Now, the 2-year-old is halfway through chemotherapy and feeling better, and he and his family are ready to face the road ahead.
Atticus seemed like happy, healthy baby.
“He was very self-sufficient as a baby,” said his dad, Caleb. “He loved being on the floor and playing around.”
But suddenly, Atticus’ easy-going demeanor changed.
Brain cancer is now the leading cancer killer in kids, and St. Baldrick’s has just partnered with the National Brain Tumor Society to do something about it. Read on for more about what this partnership is going to do about brain cancer and how it could revolutionize childhood cancer research forever.
Many kids with leukemia are now getting better and surviving their cancer, thanks to great strides in childhood cancer research over the years. But unfortunately, a lot of kids with brain tumors are not seeing the same results.
In fact, brain cancer just outpaced leukemia to become the number one cancer killer in children, according to a new report from the Centers for Disease Control and Prevention.
At 12 years old, Hope dreamed big. She wanted to be the next Asian Taylor Swift, a doctor, a nurse, or maybe even a minster. She had a lifetime of plans to make a dreams to chase until she was diagnosed with DIPG, a pediatric brain tumor with no known cure. Her mom tells her story.
There is a song that Garth Brooks sings that includes the lyrics, “Some of God’s greatest gifts are unanswered prayers.” That is exactly what Hope was to our family.
Liam Webb gave great hugs, told the best knock-knock jokes, and would have probably been an extraordinary rock climber one day, considering his love of scaling trees and fences. Read on for more about this amazing kid and why his parents love St. Baldrick’s and the research we fund.
Liam and his dad strike a superhero pose.
Liam was an adventurous kid, particularly when it came to climbing. The tree in his front yard drew the boy like a moth to a flame.
Ambassador Isaac finished treatment for medulloblastoma almost four years ago. But today, on the five-year anniversary of his diagnosis, the effects of childhood cancer are still evident in his everyday life. Read what his mom, April, has to say about what survivorship looks like for Isaac.
People often say to me, “Move on. Let it go. He’s cancer free. We’re sick of hearing about it.”
Yes, it has been some time since Isaac finished treatment for medulloblastoma on August 24, 2012. He has made tremendous strides, and let’s face it — he’s still here and cancer free.
So why don’t I forget it? Why do I seem forever trapped in this cancer nightmare?
Dr. Ralph Ermoian is a radiation oncologist and St. Baldrick’s infrastructure grant recipient at the University of Washington. He explains what proton therapy is, how it works, and how this treatment is helping kids and adults with cancer.
What is proton therapy?
Proton therapy is a type of radiation used commonly for children with cancer. Like traditional x-ray radiation, it is used to treat cancers, but proton therapy affects less of the healthy tissue surrounding the tumor.
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