Families

From the Balance Beam to the Barber’s Chair: Juliana’s Story

by Juliana Abraham
July 6, 2017

Whether on the mat or under the clippers, Honored Kid Juliana lives with passion — and a brain tumor will never take that away from her. Learn more about Juliana, her diagnosis and its impact, and why she shaved her head for kids like her.

Juliana doing gymnastics

Juliana competes at a gymnastics championship before her diagnosis.

Growing up, I was active and always full of energy. To fuel my need for excitement, my parents enrolled me in gymnastics. I soon discovered that gymnastics was my calling. After winning many state titles and high-level regional and national titles, I was on my way to becoming a USA Gymnastics Elite gymnast.

In May of 2015, I started having difficulties with my vision and balance.

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Research

St. Baldrick’s Fellow Studies Promising Treatment for High-Grade Gliomas

by Erinn Jessop, St. Baldrick's Foundation
May 23, 2017

When St. Baldrick’s Fellow Dr. Adam Green learned about high-grade gliomas and met kids diagnosed with the brain tumors, he knew he had to help. And today he’s doing just that. Read on for more about Dr. Green, his exciting research, and how St. Baldrick’s helped him make it happen.

Dr. Adam Green in the lab with his colleagues

Dr. Adam Green in his lab at the University of Colorado with his lab members, from left to right: Rakeb Lemma, Dr. Green, John DeSisto and Patrick Flannery. Dr. Green’s research is funded in part by the Luke’s Army Pediatric Cancer Research Fund, a St. Baldrick’s Hero Fund created in memory of Luke Ungerer, a little boy who died of brain cancer.

Dr. Adam Green distinctly remembers the first time he gave a family the news that their child had an aggressive, fatal brain tumor. It was an experience that’s hard to forget.

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Families

Happiness is a Form of Courage

by Tracey Blackmore
May 17, 2017

Tracey Blackmore lost her son Brooks to brain cancer last year. In this guest blog, she describes how she both grieves for her little boy and gives back in his honor.

Tracey and her son Brooks

Tracey and Brooks laugh together.

There are so many different ways to deal with the grief of losing a child.  There is no “right” way, but I knew what MY way had to be.  I knew I had to wake up everyday and choose happiness in my son’s honor.

Brooks Blackmore was only 5 years old when he was diagnosed with two stage 4 brain tumors on June 13, 2015.  We were told that they were inoperable, there was no cure and radiation was the only hope to prolong his life.

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Families

‘They Know Who They’re Fighting For’: Luke’s Legacy

by Scott Ungerer
March 21, 2017

Honored Kid Luke was just 3 years old when an MRI scan revealed a large tumor in his brain. When Luke passed away seven months later, his parents chose to honor Luke by starting a Hero Fund in his name — and they’ve been working hard to help fund childhood cancer research ever since. This fall, they got to see first-hand how their hard work is paying off. Luke’s dad, Scott, tells the story.

Luke Superhero Cape

You can learn more about Luke’s Army by visiting his Hero Fund.

This is a story about love.

A story about joy and happiness, fear and anger and sadness — about faith and, ultimately, hope.

This story begins with one tiny drop of water in the vast ocean of life.

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Families

Tenacious and Fighting: Atticus’ Story

by Lauren Feller, St. Baldrick's Foundation
January 20, 2017

Honored Kid Atticus was diagnosed with a rare form of brain cancer called choroid plexus carcinoma (CPC) after a scan revealed a tumor the size of a tennis ball. Now, the 2-year-old is halfway through chemotherapy and feeling better, and he and his family are ready to face the road ahead.

atticus smiling

Atticus seemed like happy, healthy baby.

“He was very self-sufficient as a baby,” said his dad, Caleb. “He loved being on the floor and playing around.”

But suddenly, Atticus’ easy-going demeanor changed.

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News

St. Baldrick’s and the National Brain Tumor Society Join Forces to Defeat Pediatric Brain Cancer

by Erinn Jessop, St. Baldrick's Foundation
October 6, 2016

Brain cancer is now the leading cancer killer in kids, and St. Baldrick’s has just partnered with the National Brain Tumor Society to do something about it. Read on for more about what this partnership is going to do about brain cancer and how it could revolutionize childhood cancer research forever.

St. Baldrick's + the National Brain Tumor Society

Many kids with leukemia are now getting better and surviving their cancer, thanks to great strides in childhood cancer research over the years. But unfortunately, a lot of kids with brain tumors are not seeing the same results.

In fact, brain cancer just outpaced leukemia to become the number one cancer killer in children, according to a new report from the Centers for Disease Control and Prevention.

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Families

Holding on to Hope: Our Family’s DIPG Story

by Deb Fuller
September 15, 2016

At 12 years old, Hope dreamed big. She wanted to be the next Asian Taylor Swift, a doctor, a nurse, or maybe even a minster. She had a lifetime of plans to make a dreams to chase until she was diagnosed with DIPG, a pediatric brain tumor with no known cure. Her mom tells her story.

Hope smiles with her mother, Deb Fuller

There is a song that Garth Brooks sings that includes the lyrics, “Some of God’s greatest gifts are unanswered prayers.” That is exactly what Hope was to our family.

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Families

The Boy Who Gave Back: Liam’s Story

by Erinn Jessop, St. Baldrick's Foundation
August 11, 2016

Liam Webb gave great hugs, told the best knock-knock jokes, and would have probably been an extraordinary rock climber one day, considering his love of scaling trees and fences. Read on for more about this amazing kid and why his parents love St. Baldrick’s and the research we fund.

Liam and his dad strike a superhero pose

Liam and his dad strike a superhero pose.

Liam was an adventurous kid, particularly when it came to climbing. The tree in his front yard drew the boy like a moth to a flame.

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Families

Life After Brain Cancer: Isaac’s Late Effects

by April Schippers
June 21, 2016

Ambassador Isaac finished treatment for medulloblastoma almost four years ago. But today, on the five-year anniversary of his diagnosis, the effects of childhood cancer are still evident in his everyday life. Read what his mom, April, has to say about what survivorship looks like for Isaac.

Isaac and his mom, April

People often say to me, “Move on. Let it go. He’s cancer free. We’re sick of hearing about it.”

Yes, it has been some time since Isaac finished treatment for medulloblastoma on August 24, 2012. He has made tremendous strides, and let’s face it — he’s still here and cancer free.

So why don’t I forget it? Why do I seem forever trapped in this cancer nightmare?

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Facts

What Is Proton Therapy?

by St. Baldrick's Foundation
June 20, 2016
What is Proton Therapy

Dr. Ralph Ermoian is a radiation oncologist and St. Baldrick’s infrastructure grant recipient at the University of Washington. He explains what proton therapy is, how it works, and how this treatment is helping kids and adults with cancer.

What is proton therapy?

Proton therapy is a type of radiation used commonly for children with cancer. Like traditional x-ray radiation, it is used to treat cancers, but proton therapy affects less of the healthy tissue surrounding the tumor.

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