Families

Tenacious and Fighting: Atticus’ Story

by Lauren Feller, St. Baldrick's Foundation
January 20, 2017

Honored Kid Atticus was diagnosed with a rare form of brain cancer called choroid plexus carcinoma (CPC) after a scan revealed a tumor the size of a tennis ball. Now, the 2-year-old is halfway through chemotherapy and feeling better, and he and his family are ready to face the road ahead.

atticus smiling

Atticus seemed like happy, healthy baby.

“He was very self-sufficient as a baby,” said his dad, Caleb. “He loved being on the floor and playing around.”

But suddenly, Atticus’ easy-going demeanor changed.

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News

St. Baldrick’s and the National Brain Tumor Society Join Forces to Defeat Pediatric Brain Cancer

by Erinn Jessop, St. Baldrick's Foundation
October 6, 2016

Brain cancer is now the leading cancer killer in kids, and St. Baldrick’s has just partnered with the National Brain Tumor Society to do something about it. Read on for more about what this partnership is going to do about brain cancer and how it could revolutionize childhood cancer research forever.

St. Baldrick's + the National Brain Tumor Society

Many kids with leukemia are now getting better and surviving their cancer, thanks to great strides in childhood cancer research over the years. But unfortunately, a lot of kids with brain tumors are not seeing the same results.

In fact, brain cancer just outpaced leukemia to become the number one cancer killer in children, according to a new report from the Centers for Disease Control and Prevention.

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Families

Holding on to Hope: Our Family’s DIPG Story

by Deb Fuller
September 15, 2016

At 12 years old, Hope dreamed big. She wanted to be the next Asian Taylor Swift, a doctor, a nurse, or maybe even a minster. She had a lifetime of plans to make a dreams to chase until she was diagnosed with DIPG, a pediatric brain tumor with no known cure. Her mom tells her story.

Hope smiles with her mother, Deb Fuller

There is a song that Garth Brooks sings that includes the lyrics, “Some of God’s greatest gifts are unanswered prayers.” That is exactly what Hope was to our family.

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Families

The Boy Who Gave Back: Liam’s Story

by Erinn Jessop, St. Baldrick's Foundation
August 11, 2016

Liam Webb gave great hugs, told the best knock-knock jokes, and would have probably been an extraordinary rock climber one day, considering his love of scaling trees and fences. Read on for more about this amazing kid and why his parents love St. Baldrick’s and the research we fund.

Liam and his dad strike a superhero pose

Liam and his dad strike a superhero pose.

Liam was an adventurous kid, particularly when it came to climbing. The tree in his front yard drew the boy like a moth to a flame.

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Families

Life After Brain Cancer: Isaac’s Late Effects

by April Schippers
June 21, 2016

Ambassador Isaac finished treatment for medulloblastoma almost four years ago. But today, on the five-year anniversary of his diagnosis, the effects of childhood cancer are still evident in his everyday life. Read what his mom, April, has to say about what survivorship looks like for Isaac.

Isaac and his mom, April

People often say to me, “Move on. Let it go. He’s cancer free. We’re sick of hearing about it.”

Yes, it has been some time since Isaac finished treatment for medulloblastoma on August 24, 2012. He has made tremendous strides, and let’s face it — he’s still here and cancer free.

So why don’t I forget it? Why do I seem forever trapped in this cancer nightmare?

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Facts

What Is Proton Therapy?

by St. Baldrick's Foundation
June 20, 2016
What is Proton Therapy

Dr. Ralph Ermoian is a radiation oncologist and St. Baldrick’s infrastructure grant recipient at the University of Washington. He explains what proton therapy is, how it works, and how this treatment is helping kids and adults with cancer.

What is proton therapy?

Proton therapy is a type of radiation used commonly for children with cancer. Like traditional x-ray radiation, it is used to treat cancers, but proton therapy affects less of the healthy tissue surrounding the tumor.

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Kids with Cancer

We’ll Miss You, Sweet Avery

by Jane Hoppen, Director of Family Relations, St. Baldrick's Foundation
June 13, 2016

On June 13, we learned that 2013 Ambassador Avery passed away.

Ambassador Avery in her photoshoot

In loving memory of sweet Avery, forever 13.

“She was peaceful and calm,” wrote her mom, Stephanie, on the Fabulous Team Avery Facebook group earlier today.

Even though we knew Avery was on hospice, the words felt like a sucker punch to the gut. No amount of preparation could have prepared us for the news that childhood cancer claimed the life of a fabulous kid like Avery.

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Families

When Things Don’t Go As Planned: Avery’s Unexpected Turn

by St. Baldrick's Foundation
June 8, 2016

In our last update on 2013 Ambassador Avery, she was participating in a clinical trial to treat her brain tumor. Today, she’s off the trial and back home on hospice care. Here’s an update on the next chapter in Avery’s story.

Ambassador Avery headshot

2013 Ambassador Avery was diagnosed with a brain tumor in 2011.

At the end of last year, after living with a stable brain tumor for two and a half years, 13-year-old Avery was back in the fight against childhood cancer.

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Families

When There Is No Relief: An Excerpt From Ellie Ewoldt’s ‘Chase Away Cancer,’ Part 2

by Ellie Ewoldt
June 1, 2016

This is part two of an excerpt from 2015 Ambassador Chase’s mom’s new book, “Chase Away Cancer.” Read along as she gives an inside look into their family’s life during Chase’s childhood cancer treatment, and then head over to our shop to grab a copy of her book so you can read the rest. 100% of the proceeds from books bought on our shop will help us fund childhood cancer research!

Chase, Ellie, and Bob together

Chase with his parents, Ellie and Bob. Chase was diagnosed with an atypical teratoid rhabdoid tumor (ATRT) when he was 2 years old.

Missed part 1? Read it here >

Much later, as the night-shift nurses crept into the room, giving medicine and checking on Chase, the usually familiar, comforting sounds changed.

The nurses’ movements became more urgent, and then through a sleep-induced fog, I heard the snap of a switch and light flooded the room.

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Families

When Hospital Becomes Home: An Excerpt From Ellie Ewoldt’s ‘Chase Away Cancer,’ Part 1

by Ellie Ewoldt
May 31, 2016

If you’re like us and you fell in love with Chase as soon as you read his story, you’ll definitely want to grab a copy of his mom’s new book, “Chase Away Cancer.” Read the passage below about Chase’s second day of radiation, and then head over to the St. Baldrick’s shop to buy a copy and read the rest. 100% of your purchase through this link will help us fund lifesaving childhood cancer research.

Ellie and Chase sitting together and laughing

Chase was diagnosed with an atypical teratoid rhabdoid tumor (ATRT) when he was 2. Now, he’s 6 years old and stable.

Despite medical intervention, Chase’s fever continued to rise and his heart rate wouldn’t come down. The doctors came and went, talking to us and then stepping out in the hall to phone Chase’s other doctors and make plans.

Chase himself was in fairly good spirits as he’d been given stickers and a comfortable, soft pair of yellow hospital pants, but monitors don’t lie. His heart rate was staying way too high while the fever hovered around 104.

After repeated sessions of consulting with us and stepping into the hallway to get on the phone with Dr. Lulla and Chase’s team, all the white coats concurred: Chase needed to “go home.”

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