Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

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Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

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