Families

Good News and a Special Visit: An Update on Honored Kid Zach

by Nancy Swart
August 31, 2017

There’s nothing sweeter than a reunion with someone you love. Nancy Swart knows that better than anyone. Earlier this month, she had the happiest of reunions with her son Zach, who has been away from home to get treatment for leukemia. Read on for more from Nancy about the time they spent together, how Zach is doing since his bone marrow transplant and the news that made him smile.

Nancy and Zach

Nancy and Zach have a special moment together.

Zach’s dad, Tom, has been living with Zach in an apartment we have been renting in New York City, so that we can be close to the hospital for follow-up visits. It has been great for Tom to be able to spend time with Zach and I know Zach has needed some quality time with dad, so it has been a nice change to get some male bonding time.

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Families

A Life Saved in Six Minutes: An Update on Zach [VIDEO]

by Nancy Swart
July 5, 2017

Last week, we shared Honored Kid Zach’s amazing story and the news that the three-time cancer fighter was going to get a bone marrow transplant — a procedure that could put the 15-year-old into remission for good. Today, about a week after the transplant, Zach’s mom has an update.

Zach and his family before his BMT

The family gathers before Zach’s bone marrow transplant. From left to right: Nancy, Ben, Tom and Zach, with Gabe on Facetime.

My son, Zach, is fighting cancer for the third time, which means this is the third time going through tests, treatments and all the uncertainties that follow. Zach had three months of intense chemo therapy to try to get him into remission before his bone marrow transplant or BMT. At the end of his treatments, through numerous hospitalizations, we learned that Zach was not in remission.

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Childhood Cancer

Three-Time Cancer Fighter Gets Another Chance at Life [VIDEO]

by Erinn Jessop, St. Baldrick's Foundation
June 26, 2017

Honored Kid Zach has faced leukemia three times since he was 6 years old. On Wednesday, after 10 years of fighting, he hopes that this is it — that a bone marrow transplant will put him in remission for good. Learn about his tremendous journey and why children’s cancer research is important to him.

Zach wears a red clown nose

Zach clowns around during treatment.

Wednesday is a big day for 15-year-old Zach. After two relapses and years of childhood lost to cancer, it’s a new start.

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Families

Dear Cancer Moms…

by Katie Pierantozzi
May 12, 2017

Katie Pierantozzi always wanted to be a mom. But she never imagined she’d be a cancer mom. In celebration of Mother’s Day, read on for a message and a Mother’s Day wish from Katie for all those moms out there who have a child with cancer.

Katie and her family

The Pierantozzi family from left to right: Nicky, Justin, Michael and their mom, Katie.

Her name was Junie. I loved to rock my favorite baby doll in a little wooden crib, painted pale pink. I liked real babies, too. I looked forward to being a mom. I would be good at it.

Eventually, God gave me three beautiful baby boys. It didn’t take long to realize that motherhood is no Pampers commercial, where babies crawl around on spotless floors and moms look perfect.

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Families

18-Year-Old Cancer Fighter Gives Back by ‘Painting the Town Gold’

by Erinn Jessop, St. Baldrick's Foundation
May 9, 2017

When Todd Schultz shaved with St. Baldrick’s in 2013, he had no idea that just a few months later he’d be diagnosed with kids’ cancer. Read on for more about Todd’s diagnosis and how he’s raising awareness, plus vital dollars for research, as the founder of a St. Baldrick’s non-profit partner — Painting the Town Gold.

Todd Schultz is the 18-year-old founder of Painting the Town Gold

Todd Schultz is the 18-year-old founder of the St. Baldrick’s partner Painting the Town Gold.

Two weeks before his diagnosis, Todd Schultz was on the football field. The 13-year-old was a linebacker — strong, fit and ready to do what it took to keep the other team from stopping the ball.

He was lifting weights to get even stronger and acting as the umpire at kids’ baseball games. His hair was just growing back after shaving it with St. Baldrick’s in honor of a little girl he knew who was diagnosed with children’s cancer.

Todd was healthy, with his freshman year of high school just around the corner.

Then everything changed.

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Families

The Kid With Superhero Cells: Leon’s Immunotherapy Story

by Erinn Jessop, St. Baldrick's Foundation
February 21, 2017

Honored Kid Leon is one tough cookie. He’s fought childhood cancer not just once, but twice, and this time, Leon and his family hope it’s gone for good — thanks to an immunotherapy trial run by Leon’s buddy Dr. Daniel Lee, an investigator with the Stand Up to Cancer – St. Baldrick’s Dream Team*.

Dr. Lee and Leon

Leon and St. Baldrick’s researcher Dr. Daniel Lee share some smiles.

Everything changed one hot summer day in Colorado. Leon was spraying his cousins with a water gun and playing with the hose. Then the 9-year-old slipped on the slick deck and fell hard.

It was a badly bruised hip, said the doctors in the emergency room. It will heal. But it didn’t. Leon’s grandmother, Lisa, watched her normally active grandson walk gingerly and even resort to crutches.

Then she watched Leon get tired more quickly than a kid should. And then she watched him sleep. He slept and slept.

“And I knew then,” Lisa said. “I was like, ‘I think he’s sick again.’”

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Advocacy

From Cancer Mom to Advocate: A Journey of Passion

by Nancy Lenfestey
November 4, 2016

Nancy knows advocating for childhood cancer research is more than a job. For her, it’s a passion fueled by her son Scott’s leukemia diagnosis and the shocking shortage of kid-specific treatment options available to him — a topic she helped tackle in her recent work on a comprehensive childhood cancer landscape report. Read about Nancy’s journey from childhood cancer mom to advocate, and her take on the report, below.

Nancy and son

When my son, Scott, was diagnosed with acute lymphoblastic leukemia at the age of 3, I wavered for a good three months between wanting to know everything about childhood cancer and not wanting read a single thing.

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