This two-day event in Washington, D.C. brought advocates to Capitol Hill to share their stories and ask their representatives to:
- Co-Sponsor the STAR Act — the most comprehensive childhood cancer bill ever introduced to Congress
- Support the inclusion of the RACE Act in the FDA User Fee Bill
- Increase federal funding for cancer research
Here is a little behind-the-scenes look at our day on the Hill…
Childhood cancer doesn’t just affect the child who’s diagnosed, it affects the entire family. May’s Advocate of the Month — the Lautieri Family — is fighting back. Read on for more about the family’s cancer journey with Honored Kid Grayson and why they continue to speak up and give back.
Grayson wears a hat emblazoned with his team name.
When Honored Kid Grayson Lautieri finished treatment in April, he was done with chemo, but he and his family weren’t done fighting against childhood cancer.
Do you care about children’s cancer? Do you want all kids to live long, healthy lives? Do you want more funding for more lifesaving research, so kids with cancer can get back to being kids? (Is that a big YES we heard?) Ta da — you’re an advocate!
Yep, it’s that simple. And now it’s time to get down to business, advocate. At this critical moment, when federal research funding is being threatened, it’s time to ACT. It’s time to speak up for kids with cancer by supporting the STAR Act, the most comprehensive childhood cancer bill to hit the Hill.
And guess what? You don’t have to stalk the halls of Congress or shake hands and kiss babies — you can speak up for kids’ cancer wherever you are.
The March Advocate of the month is Kelly Forebaugh, a hero for kids with cancer who wears many hats — she’s the Director of Hero Funds and Memorials at St. Baldrick’s, mom to a cancer survivor, a staunch advocate for children’s cancer research, a shavee and a regular at Childhood Cancer Action Days on Capitol Hill. What inspires her to do all this? Read on to find out.
Kelly gets her head shaved by her son, Jackson, during their family’s 2016 St. Baldrick’s head-shaving event.
Need some monthly inspiration? We’ve got it! Each month we will be highlighting one of our heroes right here on the blog. Without further ado, say hello to our first Advocate of the Month: Wendy Baskins. Wendy never backs down from a fight — just like her son, Stephen, who battled cancer three times. Read on for more about Stephen, what he taught her, and why Wendy fights for families facing childhood cancer.
Wendy wears a big grin as she goes bald for childhood cancer research during the 46 Mommas Shave for the Brave event. Courtesy of Cassell Photography
When the going gets tough, the tough get going. That is one of the many things Wendy Baskins learned from her son, Stephen.
What happens when a group of experts come together to discuss developments in childhood cancer research and advocacy? Some inspiring conversations about new data, drugs and therapies, important childhood cancer legislation, and more — all to make sure we’re making the best investments with YOUR donations. Get the scoop on our 2016 Research and Advocacy Priorities Summit below.
Every couple of years, St. Baldrick’s brings together our experts to take stock of what we’re doing now, and to look to the future of childhood cancer research. We examine what we are doing well, what we can do better, and what we need to do to help kids with cancer not only survive, but thrive.
Yesterday, a panel of cancer experts were named to Vice President Joe Biden’s “moonshot” initiative to cure cancer. Read what Danielle Leach, our Director of Government Relations and Advocacy, has to say about this step forward for kids with cancer.
Danielle’s oldest sons, Mateo (left) and Mason. Mason was diagnosed with a brain tumor when he was 3.
For most families, the dinner table is a safe place. But for me, it’s a constant reminder that my son Mason is not there.
Dinner was always a time where our family shared laughs, ideas and dreams, and our son Mason was often the loudest at the table. He yearned to be heard among the lively bunch that is our family.
Danielle Leach, our Director of Government Relations and Advocacy, received an exciting invitation last month — she was asked to speak to the House Appropriations Committee. Step into her shoes as she recounts her experience testifying to Congress about childhood cancer and the need for research funding.
Danielle testifies to Congress about childhood cancer.
The mid-term elections are over, 2015 has begun and our new senators and representatives are taking their seats. Should passionate, well-informed pediatric cancer advocates wait and see what they’ll do? No way.
St. Baldrick’s Hero Fund manager, Kelly Forebaugh, (on left) and board member Amy Bucher at Childhood Cancer Action Days 2014
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