Members of the Alliance for Childhood Cancer will host the two-day event that includes issues and advocacy training, and pre-arranged Capitol Hill visits with members of Congress and staff. The Alliance goal is to provide the childhood cancer community — parents, children, and others — with the opportunity to visit their representatives on Capitol Hill and advocate for the important childhood cancer issues currently before Congress.
More than 140 advocates participated in Childhood Cancer Action Days 2013, with 145 pre-scheduled meetings with legislators and staff. As a result, new cosponsors were added to each legislative bill impacting childhood cancer, and 17 members of the House joined the Congressional Childhood Cancer Caucus.
SCHEDULE AT A GLANCE
- Monday, June 23, 10 a.m.-6:30 p.m.: Advocacy training and issues presentation, by Soapbox Consulting
- Tuesday, June 24, 8 a.m.-5 p.m.: Kick-off and Capitol Hill visits
- Event Participation: Online registration will open in late March
- Transportation to/from Childhood Cancer Action Days is the responsibility of those attending
- More information to follow
The June 23 advocacy training will take place at the American Society of Clinical Oncology (ASCO) headquarters in Old Town Alexandria, VA, as it did last year. ASCO headquarters is located a few subway stops from Ronald Reagan National Airport. The host hotel (see below) is just across the street from ASCO. The Alliance will provide buses to and from Capitol Hill on June 24.
Hotel Reservations: A block of rooms is reserved at the Hotel Residence Inn Old Town South Carlyle, at a room rate of $189 studio or $209 single per night. The hotel will accept reservations on a first-come, first-served basis. Go to http://cwp.marriott.com/wasra/afcc to book your hotel reservations, or call (703) 549-1155.
The Alliance for Childhood Cancer
Founded in 2001, the Alliance for Childhood Cancer is a forum of thirty national patient advocacy groups, and medical and scientific organizations. These organizations meet regularly in Washington, D.C., to share ideas and concerns and work collaboratively to advance policies leading to improved research, public education, and diagnosis, treatment, supportive care and survivorship for children and adolescents with cancer.
If you have any questions, please email me at Lisa@StBaldricks.org.
On behalf of the St. Baldrick’s Foundation and the Alliance for Childhood Cancer, I look forward to seeing you in June!
Alliance Full Member Organizations
American Academy of Pediatrics
American Cancer Society Cancer Action Network
American Cancer Society
American Childhood Cancer Organization
American Society of Clinical Oncology
American Society of Pediatric Hematology/Oncology
Association of Pediatric Hematology-Oncology Nurses
Association of Pediatric Oncology Social Workers
Children’s Brain Tumor Foundation
Children’s Cause for Cancer Advocacy
Children’s Oncology Group
CureSearch for Children’s Cancer
Leukemia & Lymphoma Society
National Children’s Cancer Society
Pediatric Brain Tumor Foundation
Sarcoma Foundation of America
Society of Pediatric Psychology
St. Baldrick’s Foundation
Alliance Associate Organizations
American Brain Tumor Association
American Pediatric Surgical Association
American Psychological Association
American Society for Radiation Oncology
Cancer Support Community
Kids v Cancer
National Brain Tumor Society
National Coalition for Cancer Survivorship
Patient Advocate Foundation
Join the St. Baldrick’s Foundation’s advocacy network, Speak Up for Kids’ Cancer, to stay updated on childhood cancer advocacy issues.
Read past updates from Speak Up for Kids’ Cancer: